Heydari Fatemeh, Nikfarid Lida, Oujian Parastoo, Nasiri Maliheh, Motefakker Sanaz
Department of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
Department of Psychiatric and Management Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
Indian J Palliat Care. 2022 Jan-Mar;28(1):28-36. doi: 10.25259/IJPC_107_21. Epub 2022 Feb 4.
Despite improvement in childhood cancer survival in recent decades, it is still an extremely challenging health condition for parents. The impacts of childhood cancer on the family as a whole are recently interested by researchers. Family coherence is one of these concepts and health-care providers need to understand the perception of parents of family coherence. This study aimed to assess the correlation between perceived family sense of coherence (SOC) in parents of children with cancer; with socio-demographic, psycho-emotional and family-related variables.
This cross-sectional correlational study recruited 125 parents of children with cancer attending hospitals in Tehran in 2020, selected by convenience sampling method. The correlation between family SOC and demographic variables, chronic sorrow, coping behaviours, family functioning and social support was investigated using regression analysis.
The mean score perceived sense of family coherence in parents of children with cancer was higher in fathers (Beta = 0.17, = 0.02), urban residents (beta = -0.2, = 0.01) and homeowners (beta = -0.27, = 0.001). The sense of family coherence had positive correlations with income grade (beta = 0.27, = 0.006), coping behaviours (beta = 1.28, = 0.002), social support (beta = 0.67, = 0.001), negative correlations with the disturbance in family problem-solving (beta = -0.28, = 0.006) and chronic sorrow (beta=-0.39, = 0.001).
The present study expanded the concept of family SOC in nursing knowledge and attracted the attention of the providers of family-centred care to the parents of children with cancer and their concerns, which directly and indirectly affect the entire family's health.
尽管近几十年来儿童癌症生存率有所提高,但对父母来说,这仍是极具挑战性的健康状况。儿童癌症对整个家庭的影响最近受到了研究人员的关注。家庭凝聚力就是其中一个概念,医疗保健提供者需要了解父母对家庭凝聚力的认知。本研究旨在评估癌症患儿父母感知到的家庭凝聚力感(SOC)与社会人口学、心理情绪及家庭相关变量之间的相关性。
本横断面相关性研究于2020年通过便利抽样法招募了125名在德黑兰医院就诊的癌症患儿父母。采用回归分析研究家庭SOC与人口统计学变量、慢性悲伤、应对行为、家庭功能和社会支持之间的相关性。
癌症患儿父母中,父亲(β=0.17,P=0.02)、城市居民(β=-0.2,P=0.01)和自有住房者(β=-0.27,P=0.001)感知到的家庭凝聚力平均得分较高。家庭凝聚力感与收入等级(β=0.27,P=0.006)、应对行为(β=1.28,P=0.002)、社会支持(β=0.67,P=0.001)呈正相关,与家庭问题解决障碍(β=-0.28,P=0.006)和慢性悲伤(β=-0.39,P=0.001)呈负相关。
本研究扩展了护理知识中家庭SOC的概念,引起了以家庭为中心的护理提供者对癌症患儿父母及其担忧的关注,这些担忧直接或间接地影响着整个家庭的健康。