《COVID-19 期间痴呆症患者的家庭护理：主题分析》
Family Caregiving for People Living With Dementia During COVID-19: A Thematic Analysis.
机构信息
University of Calgary, Alberta, Canada.
出版信息
J Fam Nurs. 2022 Aug;28(3):219-230. doi: 10.1177/10748407221100553. Epub 2022 Jun 8.
Abstract
This study examines the experiences and needs of family caregivers (FCGs) for people living with dementia (PLWD) during the coronavirus disease 2019 (COVID-19) pandemic. Six focus groups were conducted with 21 FCGs from across the care continuum and thematic analysis was used to illuminate FCGs descriptions of their experiences and needs. Three main themes were identified that highlight the disruption the pandemic caused for FCGs: changes in the caregiving role, information use and needs, and mental and physical health outcomes. To better support FCGs during COVID-19 and future public health emergencies, we recommend that (a) information is accessible, specific, and centralized; (b) resources are tailored to the caregiving dyad (FCG and PLWD) and creatively adapted to public health restrictions; and (c) opportunities for the caregiving dyad to receive physical, social, and emotional engagement and support are maintained.
摘要
本研究探讨了在 2019 年冠状病毒病（COVID-19）大流行期间，照顾痴呆症患者（PLWD）的家庭照顾者（FCG）的经历和需求。通过跨护理连续体的 6 个焦点小组，对 21 名 FCG 进行了调查，并采用主题分析来阐明 FCG 对其经历和需求的描述。确定了三个主要主题，突出了大流行对 FCG 造成的破坏：照顾角色的变化、信息使用和需求，以及心理和身体健康结果。为了在 COVID-19 期间和未来的公共卫生紧急情况下更好地支持 FCG，我们建议：（a）信息可访问、具体且集中；（b）资源针对照顾者对（FCG 和 PLWD）进行定制，并根据公共卫生限制进行创造性调整；（c）为照顾者对提供身体、社会和情感的参与和支持的机会得以维持。
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