Bennett Sarah E, Zangi Heidi A, Larsson Ingrid, Beauvais Catherine, Boström Carina, Domján Andrea, van Eijk-Hustings Yvonne, Van der Elst Kristien, Fayet Françoise, Ferreira Ricardo J O, Fusama Mie, Geneva-Popova Mariela, Herrero Manso María Del Carmen, Hoeper Kirsten, Jones Bethan, Kukkurainen Marja Leena, Gladys Kwok Suet Kei, Minnock Patricia, Nava Tiziana, Primdahl Jette, Rawat Roopa, Sierakowska Matylda, Stoffer-Marx Michaela, van Tubergen Astrid, Ndosi Mwidimi
School of Health and Social Wellbeing, University of the West of England, Bristol, UK.
Translational Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.
Ann Rheum Dis. 2022 Oct;81(10):1348-1357. doi: 10.1136/annrheumdis-2022-222253. Epub 2022 Jun 8.
To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asian countries and identify potential barriers and facilitators to their application.
A parallel convergent mixed-methods design with an inductive approach was used. A web-based survey, available in 20 different languages, was distributed to health professionals by non-probability sampling. The level of agreement and applicability of each recommendation was assessed by (0-10) rating scales. Barriers and facilitators to implementation were assessed using free-text responses. Quantitative data were analysed descriptively and qualitative data by content analysis and presented in 16 categories supported by quotes.
A total of 1159 completed the survey; 852 (73.5%) were women. Most of the professionals were nurses (n=487), rheumatologists (n=320), physiotherapists (n=158). For all recommendations, the level of agreement was high but applicability was lower. The four most common barriers to application were lack of time, lack of training in how to provide patient education, not having enough staff to perform this task and lack of evaluation tools. The most common facilitators were tailoring patient education to individual patients, using group education, linking patient education with diagnosis and treatment and inviting patients to provide feedback on patient education delivery.
This project has disseminated the EULAR recommendations for patient education to health professionals across 23 countries. Potential barriers to their application were identified and some are amenable to change, namely training patient education providers and developing evaluation tools.
在欧洲及三个亚洲国家的风湿病专业人员中传播并评估欧洲风湿病协会联盟（EULAR）患者教育建议的可接受程度和适用性水平，并确定其应用的潜在障碍和促进因素。
采用并行收敛性混合方法设计及归纳法。通过非概率抽样向卫生专业人员发放了有20种不同语言版本的网络调查问卷。每项建议的认同程度和适用性通过（0 - 10）评分量表进行评估。使用自由文本回复评估实施的障碍和促进因素。定量数据采用描述性分析，定性数据采用内容分析法，并以16个类别呈现，辅以引述。
共有1159人完成了调查；其中852人（73.5%）为女性。大多数专业人员是护士（n = 487）、风湿病学家（n = 320）、物理治疗师（n = 158）。对于所有建议，认同程度较高，但适用性较低。应用的四个最常见障碍是时间不足、缺乏患者教育提供方面的培训、没有足够的工作人员执行这项任务以及缺乏评估工具。最常见的促进因素是根据个体患者量身定制患者教育、采用小组教育、将患者教育与诊断和治疗相联系以及邀请患者对患者教育的实施提供反馈。
该项目已将EULAR患者教育建议传播给了23个国家的卫生专业人员。确定了其应用的潜在障碍，其中一些障碍是可以改变的，即培训患者教育提供者和开发评估工具。
