马来西亚自闭症儿童父母的自我污名及其与压力和生活质量的关系。
Self-stigma and its associations with stress and quality of life among Malaysian parents of children with autism.
机构信息
Faculty of Health Sciences, Centre for Healthy Ageing and Wellness (H-CARE), Speech Sciences Programme, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia.
Institute for Measurement, Methodology, Analysis and Policy, Texas Tech University, Lubbock, Texas, USA.
出版信息
Child Care Health Dev. 2020 Jul;46(4):485-494. doi: 10.1111/cch.12771. Epub 2020 May 28.
BACKGROUND
This study explored the relationship between self-perceived stigmatization (affiliate stigma), stress and quality of life among parents of children with autism spectrum disorder (ASD).
METHOD
Participants (N = 110) filled-in the Affiliate Stigma Scale, the Caregiver Burden Inventory and the CarerQOL scale.
RESULTS
Parents reported low scores on stigma and fair levels of stress and quality of life, indicating that parents do not feel stigmatized by affiliation with a child with ASD nor are they stressed from affiliate stigma. After controlling for demographic factors, both the relationships of affiliate stigma with stress and with quality of life were weak, indicating that stigma may have little to no effect on stress and quality of life.
CONCLUSION
Cultural and religious beliefs may play a part in the acceptance of a child's condition, resulting in less impact of stigma on the parents.
背景
本研究探讨了自闭症谱系障碍（ASD）儿童父母的自我感知污名（附属污名）、压力和生活质量之间的关系。
方法
参与者（N=110）填写了附属污名量表、照顾者负担量表和照顾者 QOL 量表。
结果
父母报告的污名评分较低，压力和生活质量处于中等水平，这表明父母不会因为与 ASD 儿童有关联而感到污名化，也不会因为附属污名而感到压力。在控制了人口统计学因素后，附属污名与压力和生活质量的关系都很弱，这表明污名对压力和生活质量的影响可能很小或没有。
结论
文化和宗教信仰可能在接受孩子的状况方面发挥作用，从而减少污名对父母的影响。
Zotero 插件