University of Saskatchewan, College of Nursing, Saskatoon, SK S7N 5E5, Canada.
University of Saskatchewan, College of Nursing, E4348 Health Sciences, Saskatoon, SK, Canada.
J Pediatr Nurs. 2022 Sep-Oct;66:86-94. doi: 10.1016/j.pedn.2022.05.021. Epub 2022 Jun 7.
Nursing presence has been viewed as a valuable way to create therapeutic relationships and has been linked to better health outcomes for patients and families. However, whether nursing presence can be described and how parents in pediatric oncology experience this phenomenon remains unanswered. Therefore, the purpose of this study was to explore how parents of children with cancer describe and experience nursing presence.
This study used Giorgi's phenomenological approach to explore nursing presence as experienced by parents of children with cancer. Ten participants from a pediatric oncology clinic in Canada were interviewed. Giorgi's approach was used to analyze these data.
Based upon participants' descriptions, a structure of nursing presence emerged which included six constituent features: An attitude of presence, a source of encouragement, clinical experience and expertise, therapeutic communication, family involvement, and a sense of home away from home. Most notably, nursing presence as experienced by parents was characterized by the 'being' and 'doing' of presence which were equally important.
The experiences described by parents provided rich and nuanced insights into what it meant to experience nursing presence in a pediatric oncology setting. This study provides a structure for this meaning making and expounds on its constituent features, describing what nursing presence resembles when experienced by parents of children with cancer.
This study informs nursing practice, policy, and education in ways that are likely to enhance care and the subsequent well-being of pediatric oncology patients and families.
护理存在被视为建立治疗性关系的一种有价值的方式，并与患者和家庭的更好健康结果相关联。然而，护理存在是否可以被描述，以及儿科肿瘤学中的父母如何体验这种现象，仍然没有答案。因此，本研究的目的是探讨癌症患儿的父母如何描述和体验护理存在。
本研究采用 Giorgi 的现象学方法来探讨癌症患儿父母所经历的护理存在。对加拿大一家儿科肿瘤诊所的 10 名参与者进行了访谈。采用 Giorgi 的方法对这些数据进行了分析。
基于参与者的描述，护理存在的结构出现了，包括六个组成特征：存在的态度、鼓励的来源、临床经验和专业知识、治疗性沟通、家庭参与和宾至如归的感觉。最值得注意的是，父母所经历的护理存在是以存在的“存在”和“做事”为特征的，这两者同样重要。
父母所描述的经历为在儿科肿瘤学环境中体验护理存在的意义提供了丰富而微妙的见解。本研究为这种意义的构建提供了一个结构，并详细阐述了其组成特征，描述了癌症患儿的父母所经历的护理存在的样子。
本研究以可能增强儿科肿瘤患者和家庭护理和随后福祉的方式为护理实践、政策和教育提供了信息。
