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法国儿童和青少年发作性睡病患者对封锁的调整。

Adjustment to lockdown in children and adolescents with narcolepsy in France.

机构信息

Pediatric Sleep Center, Hospital Robert-Debré, Paris, France.

Université Paris, Diderot, Sorbonne Paris Cité, Faculté de Médecine, Paris, France.

出版信息

J Clin Sleep Med. 2022 Sep 1;18(9):2247-2252. doi: 10.5664/jcsm.10096.

Abstract

STUDY OBJECTIVES

The goal of the current study was to explore the effect of a 2-month quarantine on children and adolescents with narcolepsy and to describe the changes in their sleep, mood, and metabolism during this period.

METHODS

The study involved 77 patients aged 7 to 23 years with a diagnosis of narcolepsy. Participants had to answer multiple-choice questions to characterize the changes and modifications in their own habits and state of health.

RESULTS

Participants reported changes in daytime sleep, nighttime sleep schedules, treatment intake, food intake, weight, and amount of screen time. Most patients reported deterioration in their memory and attention abilities as well as a decrease in their work efficiency. Mood appeared to be less affected, although it deteriorated in less than one-third of the participants who reported feeling sad more often.

CONCLUSIONS

The prolonged and complete lockdown seemed to have an effect on children and adolescents with narcolepsy, and changes are often considered by the participants to depend on or to determine an overall quality of adaptation to the situation. This study highlights the importance of maintaining and strengthening time markers in individuals with narcolepsy and should help to establish guidelines that would apply in future quarantine situations.

CITATION

de Laclause AP, Konofal E, Bokov P, Delclaux C, Lecendreux M. Adjustment to lockdown in children and adolescents with narcolepsy in France. . 2022;18(9):2247-2252.

摘要

研究目的

本研究旨在探讨为期 2 个月的隔离对儿童和青少年发作性睡病的影响,并描述在此期间他们的睡眠、情绪和代谢的变化。

方法

该研究纳入了 77 名年龄在 7 至 23 岁的确诊为发作性睡病的患者。参与者必须回答多项选择题,以描述他们自身习惯和健康状况的变化和调整。

结果

参与者报告了白天睡眠、夜间睡眠时间表、治疗药物摄入、食物摄入、体重和屏幕时间的变化。大多数患者报告说他们的记忆力和注意力能力恶化,工作效率降低。尽管情绪似乎受影响较小,但三分之一以下报告更频繁感到悲伤的参与者表示情绪恶化。

结论

长时间且完全的封锁似乎对患有发作性睡病的儿童和青少年产生了影响,参与者认为这些变化往往取决于或决定了他们对这种情况的整体适应质量。本研究强调了维持和加强发作性睡病患者时间标记的重要性,并应有助于制定适用于未来隔离情况的指导方针。

引文

de Laclause AP, Konofal E, Bokov P, Delclaux C, Lecendreux M. 调整发作性睡病患儿和青少年的隔离状态:法国的经验。 2022;18(9):2247-2252.

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