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在姑息治疗中打破坏消息时,卫生专业人员、患者和家属在真相揭示方面的体验:定性荟萃分析。

The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis.

机构信息

School of Health, Federation University Australia, Churchill, Victoria, Australia.

出版信息

Palliat Support Care. 2022 Jun;20(3):433-444. doi: 10.1017/S1478951521001243.

DOI:10.1017/S1478951521001243
PMID:35713348
Abstract

OBJECTIVE

Disclosing the truth when breaking bad news continues to be difficult for health professionals, yet it is essential for patients when making informed decisions about their treatment and end-of-life care. This literature review aimed to explore and examine how health professionals, patients, and families experience truth disclosure during the delivery of bad news in the inpatient/outpatient palliative care setting.

METHODS

A systemized search for peer-reviewed, published papers between 2013 and 2020 was undertaken in September 2020 using the CINAHL, Medline, and PsycInfo databases. The keywords and MeSH terms ("truth disclosure") AND ("palliative care or end-of-life care or terminal care or dying") were used. The search was repeated using ("bad news") AND ("palliative care or end-of-life care or terminal care or dying") terms. A meta-synthesis was undertaken to synthesize the findings from the eight papers.

RESULTS

Eight papers were included in the meta-synthesis and were represented by five Western countries. Following the synthesis process, two concepts were identified: "Enablers in breaking bad news" and "Truth avoidance/disclosure." Several elements formed the concept of Enablers for breaking bad news, such as the therapeutic relationship, reading cues, acknowledgment, language/delivery, time/place, and qualities. A conceptual model was developed to illustrate the findings of the synthesis.

SIGNIFICANCE OF RESULTS

The conceptual model demonstrates a unique way to look at communication dynamics around truth disclosure and avoidance when breaking bad news. Informed decision-making requires an understanding of the whole truth, and therefore truth disclosure is an essential part of breaking bad news.

摘要

目的

对于医疗专业人员来说,在打破坏消息时诚实地说出真相仍然很困难,但这对于患者在做出有关治疗和临终关怀的知情决策时至关重要。本文献综述旨在探讨和研究在住院/门诊姑息治疗环境中,当传递坏消息时,医疗专业人员、患者和家属如何体验到真相的揭示。

方法

2020 年 9 月,使用 CINAHL、Medline 和 PsycInfo 数据库,系统地搜索了 2013 年至 2020 年期间发表的同行评议的论文。使用了关键词和 MeSH 术语(“truth disclosure”)和(“palliative care or end-of-life care or terminal care or dying”)。使用(“bad news”)和(“palliative care or end-of-life care or terminal care or dying”)再次进行了搜索。对八篇论文进行了元综合,以综合发现。

结果

元综合纳入了八篇论文,代表了五个西方国家。经过综合处理,确定了两个概念:“打破坏消息的促成因素”和“避免/揭示真相”。几个要素构成了打破坏消息的促成因素的概念,例如治疗关系、阅读线索、承认、语言/传递、时间/地点和品质。开发了一个概念模型来说明综合结果。

结果的意义

该概念模型展示了一种独特的方式,可以观察围绕打破坏消息时的真相揭示和避免的沟通动态。知情决策需要了解全部真相,因此,真相揭示是打破坏消息的重要组成部分。

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