Haley W E, Levine E G, Brown S L, Berry J W, Hughes G H
J Am Geriatr Soc. 1987 May;35(5):405-11. doi: 10.1111/j.1532-5415.1987.tb04661.x.
While providing home care for a family member with senile dementia is clearly extremely stressful, there has been little controlled research assessing the specific effects of this stress on caregiver psychological, social, and health functioning. To address this question, 44 primary caregivers of senile dementia patients and 44 matched controls completed a series of questionnaires and interview assessments. Caregivers reported significantly higher levels of depression and negative affect toward their relatives, and lower overall life satisfaction than controls. Caregivers also had significant impairment of their social activities, including visits with friends, vacations, and church attendance when compared with controls. Caregivers expressed less satisfaction with their social networks than did controls, but the groups did not differ in objective size of social network or number of network contacts. Caregivers reported poorer health, more prescription medication use, and higher utilization of health care than controls. Results clearly indicate the serious and wide-ranging effects of the stress of caregiving, and reinforce the importance of providing comprehensive services for caregiving families.
虽然为患有老年痴呆症的家庭成员提供居家护理显然压力极大,但几乎没有对照研究评估这种压力对护理者心理、社会和健康功能的具体影响。为解决这个问题,44名老年痴呆症患者的主要护理者和44名匹配的对照组完成了一系列问卷调查和访谈评估。与对照组相比,护理者报告的抑郁程度更高,对亲属的负面影响更大,总体生活满意度更低。与对照组相比,护理者的社交活动也受到显著损害,包括与朋友的拜访、度假和参加教堂活动。与对照组相比,护理者对自己社交网络的满意度较低,但两组在社交网络的客观规模或网络联系人数量上没有差异。与对照组相比,护理者报告健康状况较差,使用的处方药更多,医疗保健利用率更高。结果清楚地表明了护理压力的严重和广泛影响,并强化了为护理家庭提供全面服务的重要性。