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描述原住民群体的产前酒精暴露和 FASD 体验:为 Kaupapa Māori 研究提供信息的全球文献综述,该研究旨在了解 FASD 对毛利人的影响。

Describing the experience of Indigenous peoples with prenatal alcohol exposure and FASD: a global review of the literature to inform a Kaupapa Māori study into the experiences of Māori with FASD.

机构信息

Middlemore Hospital, Auckland.

Auckland City Hospital, Auckland.

出版信息

N Z Med J. 2022 May 20;135(1555):59-72.

PMID:35728236
Abstract

AIM

This paper reports the findings of a literature review in answer to the research question: "What are the strengths and weaknesses of the existing research into the experience of prenatal alcohol exposure and Foetal Alcohol Spectrum Disorder in Indigenous communities?"

METHOD

MEDLINE (Ovid), psychINFO, CINAHL Plus and Web of Science, EMBASE, Informit databases were searched using key words to identify relevant literature. Given the anticipated scarcity of research relevant to our study, no geographic or chronologic limitations were placed on the searches. Studies which were solely descriptive were excluded, but reviews were included. The data analysis was informed by a Kaupapa Māori positioning and the 'CONSIDER' statement on reporting of health research involving Indigenous people.

RESULTS

Thirty-four papers met the inclusion criteria. Four main categories of papers were found: protocols/methods development, evaluation of interventions to reduce alcohol-exposed pregnancy, research seeking to understand alcohol use in pregnancy and interventions to improve the experience of people with FASD and their families. Indigenous peoples of Australia, Canada and North America were the participants of the papers found in this review, with only one research study found from Aotearoa New Zealand.

CONCLUSION

The existing literature on FASD in Indigenous communities internationally is heavily skewed towards the development and evaluation of interventions to reduce alcohol-exposed pregnancies. There is also a focus on studies which aim to understand and describe the variables which lead to alcohol use among Indigenous communities, and the relationship with alcohol use in the perinatal period. In the last ten years, a number of protocols/methods development for FASD-related interventions in Indigenous communities have been published. There is one published study from Aotearoa in the scientific literature into the experience of Māori with FASD.

摘要

目的

本文报告了文献综述的结果,以回答研究问题:“现有的关于原住民社区中产前酒精暴露和胎儿酒精谱系障碍(FASD)体验的研究有哪些优势和劣势?”

方法

使用关键词在 MEDLINE(Ovid)、心理信息数据库、CINAHL Plus 和 Web of Science、EMBASE、Informit 数据库中进行检索,以确定相关文献。由于预计与我们的研究相关的研究很少,因此对搜索没有地理或时间限制。仅描述性的研究被排除在外,但综述被包括在内。数据分析受到毛利人定位和“CONSIDER”声明的指导,该声明涉及涉及原住民的健康研究报告。

结果

有 34 篇论文符合纳入标准。发现了四类主要的论文:方案/方法开发、减少酒精暴露妊娠干预措施的评估、旨在了解妊娠期间饮酒情况的研究以及改善 FASD 患者及其家人体验的干预措施。澳大利亚、加拿大和北美的原住民是本综述中发现的论文的参与者,只有一项来自新西兰的研究。

结论

国际上关于原住民社区中 FASD 的现有文献主要集中在开发和评估减少酒精暴露妊娠的干预措施上。还有一些研究旨在了解和描述导致原住民社区饮酒的变量,以及与围产期饮酒的关系。在过去十年中,已经发表了一些针对原住民社区中与 FASD 相关的干预措施的方案/方法开发。在科学文献中,有一项关于新西兰毛利人 FASD 体验的研究。

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