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儿童长期照顾患病父母的生活质量:家庭任务、生活环境和社会支持的作用。

Quality of Life of Schoolchildren Living with a Long-Term Sick Parent: The Role of Tasks at Home, Life Circumstances and Social Support.

机构信息

Programme Participation, Talent Development, and Equality of Opportunity, SCP, The Netherlands Institute for Social Research, Bezuidenhoutseweg 30, 2594 AV The Hague, The Netherlands.

Faculty of Social Sciences, Vrije Universiteit Amsterdam, 1081 HV Amsterdam, The Netherlands.

出版信息

Int J Environ Res Public Health. 2022 Jun 8;19(12):7043. doi: 10.3390/ijerph19127043.

Abstract

This study investigates whether there are differences in quality of life-i.e., psychosomatic complaints and life satisfaction-between schoolchildren with and without a chronically ill or disabled parent at home. It also examines the role played by the intensity of tasks, life circumstances, and social support at home and school. In 2017, a Dutch representative sample of adolescents aged between 12 and 16 (from the Health Behaviour in School-aged Children study) completed a questionnaire about illness of family members, tasks at home, life circumstances and characteristics, social support, psychosomatic complaints and life satisfaction. In total, 5470 schoolchildren who did not have a parent with a chronic illness and 652 who did have a parent with a chronic illness were selected (average age 13.9). Stepwise multilevel logistic regression analyses in STATA were used. Schoolchildren with an ill parent had more psychosomatic complaints and lower life satisfaction than their counterparts without an ill parent, even when controlling for extra task hours, specific life circumstances and characteristics (e.g., more likely to be growing up in a single-parent family or stepfamily and more likely to be female), and lower perceived support. These aspects are also predictors of a lower quality of life. Professionals should address these aspects of the life of schoolchildren with a sick parent in such a way that they are facilitated to make a successful transition to adulthood.

摘要

本研究旨在探讨家中是否有慢性病或残疾父母的学龄儿童在生活质量方面(即身心抱怨和生活满意度)是否存在差异。它还考察了家庭和学校中任务强度、生活环境和社会支持所扮演的角色。2017 年,一项针对荷兰 12 至 16 岁青少年的代表性样本(来自《儿童健康行为研究》)完成了一份关于家庭成员疾病、家庭任务、生活环境和特征、社会支持、身心抱怨和生活满意度的问卷。共选择了 5470 名家中没有慢性病父母的学生和 652 名家中有慢性病父母的学生(平均年龄 13.9 岁)。使用 STATA 逐步多水平逻辑回归分析。即使在校正了额外的任务时间、特定的生活环境和特征(例如,更有可能在单亲家庭或继父家庭中长大,更有可能是女性)以及感知到的支持较低的情况下,有患病父母的学龄儿童比没有患病父母的儿童有更多的身心抱怨和较低的生活满意度。这些方面也是生活质量较低的预测因素。专业人员应该解决患病父母的学龄儿童生活中的这些方面,以使他们能够顺利过渡到成年期。

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