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Soc Sci Med. 2020 Mar;248:112826. doi: 10.1016/j.socscimed.2020.112826. Epub 2020 Jan 31.
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Articulating Sensory Sensitivity: From Bodies with Autism to Autistic Bodies.表达感官敏感性:从自闭症患者的身体到自闭症患者的身体。
Med Anthropol. 2019 Jan;38(1):30-43. doi: 10.1080/01459740.2018.1460750. Epub 2018 May 4.
4
"I'm a normal autistic person, not an abnormal neurotypical": Autism Spectrum Disorder diagnosis as biographical illumination.“我是一个正常的自闭症患者,而不是不正常的神经典型者”:自闭症谱系障碍的诊断作为传记启示。
Soc Sci Med. 2018 Jan;197:161-167. doi: 10.1016/j.socscimed.2017.12.008. Epub 2017 Dec 9.
5
Making meaningful worlds: role-playing subcultures and the autism spectrum.创造有意义的世界:角色扮演亚文化与自闭症谱系
Cult Med Psychiatry. 2015 Jun;39(2):299-321. doi: 10.1007/s11013-015-9443-x.
6
Autism and social movements: French parents' associations and international autistic individuals' organisations.自闭症与社会运动:法国家长协会及国际自闭症患者组织
Sociol Health Illn. 2008 Jan;30(1):76-96. doi: 10.1111/j.1467-9566.2007.01053.x.
7
Invisible disability.隐形残疾
Ethics. 2005 Oct;116(1):153-213. doi: 10.1086/453151.
8
Disability as masquerade.伪装的残疾
Lit Med. 2004 Spring;23(1):1-22; discussion 61-5. doi: 10.1353/lm.2004.0010.
9
The politics of reproduction.生殖政治
Annu Rev Anthropol. 1991;20:311-43. doi: 10.1146/annurev.an.20.100191.001523.

'更小的面具': 自闭症空间中的自由与真实。

'A Smaller Mask': Freedom and Authenticity in Autistic Space.

机构信息

Independent Scholar, Kochav Michael, POB 176, 7930400, Israel.

出版信息

Cult Med Psychiatry. 2023 Sep;47(3):626-646. doi: 10.1007/s11013-022-09794-1. Epub 2022 Jun 26.

DOI:10.1007/s11013-022-09794-1
PMID:35753012
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9244220/
Abstract

Autscape is an autistic-led conference, organised annually in varying locations around England. Governed by a strict set of rules and regulations, Autscape is a social and spatial setup explicitly devised to accommodate the tendencies, sensitivities, and preferences of people on the autism spectrum. It is a design, in other words-as organisers and participants alike often profess-for an altogether autistic space. The uniqueness of the event, and consequently its value to anthropological theory, lies in the shared imagination of the setting by those who inhabit it as one in which neurotypical masks, otherwise worn daily in keeping with hegemonic society's expectation of conformity, can finally be removed. I introduce the concept of un-festival as a means of depicting this event, similar to festival in its goals of defiance and inversion, but different from-and in important ways, opposite to-festival in its style and architecture, in the dispositions it encourages and mobilises, and in its potential implications. The un-festival offers a powerful comment on this moment in history, whereby masks are no longer seen as an item that affords freedom, but as one that stifles it. While Autscape participants remain doubtful as to the actual effect of this event on neurotypical society, they do nevertheless express a desire that this project will have some longstanding effects. That once a space has been designed for autistic people that considers their specific needs and tendencies, autism may then finally cease to be interpreted through a neuro-normative prism and freed to be understood in autistic people's own terms.

摘要

Autscape 是一个由自闭症患者主导的会议,每年在英格兰不同地点举行。该会议有严格的规则和规定,旨在为自闭症患者提供一个社交和空间环境,以适应他们的倾向、敏感性和偏好。换句话说,Autscape 的设计是为了创造一个完全适合自闭症患者的空间,正如组织者和参与者经常宣称的那样。该活动的独特之处,以及它对人类学理论的价值,在于居住在其中的人共同想象出这样一个环境,在这个环境中,那些每天为了符合主流社会的期望而佩戴的神经典型面具最终可以被摘下。我引入了“反节日”的概念来描述这个事件,它与节日在反抗和颠覆方面的目标相似,但在风格和结构、鼓励和调动的倾向以及潜在影响方面与节日不同,甚至相反。这个“反节日”对这一历史时刻提出了有力的评论,在这个时刻,面具不再被视为赋予自由的物品,而是扼杀自由的物品。尽管 Autscape 的参与者对该活动对神经典型社会的实际影响持怀疑态度,但他们确实表达了希望该项目能产生一些持久影响的愿望。一旦一个为自闭症患者设计的空间考虑到了他们的特殊需求和倾向,那么自闭症可能就不再被通过神经规范的视角来解读,而是可以用自闭症患者自己的方式来理解。