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在临床实践中实施亨廷顿舞蹈病的物理治疗指南。

Implementing Physiotherapy Huntington's Disease Guidelines in Clinical Practice.

机构信息

School of Healthcare Sciences, Cardiff University, Cardiff, United Kingdom.

Division of Physical Therapy, College of Medicine, The Ohio State University, Columbus, OH, USA.

出版信息

J Huntingtons Dis. 2022;11(3):307-311. doi: 10.3233/JHD-220532.

Abstract

BACKGROUND

The recently published clinical practice guideline for physiotherapy practice for Huntington's disease (HD) should be integrated into practice to develop interventions that enable people with HD to achieve personalised goals. The European Huntington's Disease Network Physiotherapy Working Group aims to support and enable the use of best evidence in physiotherapy for the HD community. Successful implementation of the clinical practice guidelines requires an understanding of facilitators and barriers to therapist implementation.

OBJECTIVE

To explore facilitators and barriers to implementing recently published clinical recommendations that guide physiotherapy practice for HD.

METHODS

An online survey was distributed globally through HD networks. Data collected included demographic information and agreement/disagreement with a series of named facilitators and barriers to implementation of each of the six physiotherapy guideline recommendations. A consensus level of≥70% agreement was set as indicative of agreement/disagreement.

RESULTS

Thirty-two physiotherapists working in a range of settings responded. Support from colleagues (81-91% agreement), an individualised physiotherapy plan (72-88% agreement) and physiotherapist's expertise in HD (81-91% agreement) were reported as facilitators. The main barriers were behavioural (72-81% agreement) and cognitive (75-81% agreement) impairments and low motivation (72-78% agreement) in persons with HD.

CONCLUSION

Physiotherapists agree that their expertise in HD and support from colleagues facilitate the development of individualised treatment plans. Further work needs to develop creative ways in which barriers specific to the cognitive and behavioural aspects of HD can be managed to enable treatment plans to be implemented.

摘要

背景

最近发布的亨廷顿舞蹈病(HD)物理治疗实践临床实践指南应融入实践中,以制定干预措施,使 HD 患者能够实现个性化目标。欧洲亨廷顿舞蹈病网络物理治疗工作组旨在支持和使 HD 社区能够使用物理治疗的最佳证据。成功实施临床实践指南需要了解治疗师实施的促进因素和障碍。

目的

探讨实施最近发布的指导 HD 物理治疗实践的临床建议的促进因素和障碍。

方法

通过 HD 网络在全球范围内在线分发调查。收集的数据包括人口统计学信息以及对实施六项物理治疗指南建议的每一项建议的一系列命名促进因素和障碍的同意/不同意程度。≥70%的共识水平表示同意/不同意。

结果

32 名在各种环境中工作的物理治疗师做出了回应。同事的支持(81-91%的同意)、个性化的物理治疗计划(72-88%的同意)和物理治疗师在 HD 方面的专业知识(81-91%的同意)被报告为促进因素。主要障碍是 HD 患者的行为(72-81%的同意)和认知(75-81%的同意)障碍以及低动力(72-78%的同意)。

结论

物理治疗师一致认为,他们在 HD 方面的专业知识和同事的支持有助于制定个性化的治疗计划。需要进一步努力,以创造性的方式解决与 HD 的认知和行为方面相关的具体障碍,以能够实施治疗计划。

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