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羞耻、污名与艾滋病毒:论情感氛围与羞耻焦虑现象学

Shame, Stigma and HIV: Considering Affective Climates and the Phenomenology of Shame Anxiety.

作者信息

Dolezal Luna

出版信息

Lambda Nord. 2021 Nov 4;26:47-75. doi: 10.34041/ln.v27.741.

Abstract

The affective climate often associated with HIV prevention and care practices is often dominated by negative emotions such as shame, fear and suspicion which arise because of HIV's historical stigma. This article explores the experiential consequences of this affective climate and the continued stigma associated with HIV, through a focus on the experience of shame anxiety which can be understood as the chronic anticipation of shame or shameful exposure. Exploring first-person narratives of gay men living with HIV, the article gives an account of how shame anxiety is central to understanding how stigma causes harm, especially in experiences of chronic illnesses such as HIV. Using a philosophical framework, through phenomenology, it will be demonstrated how shame anxiety manifests in bodily lived experience through the structure of the "horizon". The article will finish with reflections on how shame anxiety can act as a barrier to the effective delivery of health services for those with stigmatised chronic illnesses and, furthermore, why the experience of shame anxiety might be useful to consider when delivering health services.

摘要

与艾滋病毒预防和护理实践相关的情感氛围往往被诸如羞耻、恐惧和怀疑等负面情绪所主导,这些情绪因艾滋病毒长期以来的污名化而产生。本文通过关注羞耻焦虑的体验来探讨这种情感氛围的体验后果以及与艾滋病毒相关的持续污名,羞耻焦虑可被理解为对羞耻或羞耻暴露的长期预期。通过探究感染艾滋病毒的男同性恋者的第一人称叙述,本文阐述了羞耻焦虑如何对于理解污名如何造成伤害至关重要,尤其是在诸如艾滋病毒等慢性病的经历中。运用一个哲学框架,通过现象学,将展示羞耻焦虑如何通过“视域”结构在身体的生活体验中显现出来。本文最后将思考羞耻焦虑如何能够成为为患有污名化慢性病的人有效提供医疗服务的障碍,此外,在提供医疗服务时考虑羞耻焦虑的体验为何可能是有用的。

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本文引用的文献

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The role of self-compassion and shame in persons living with HIV/AIDS.HIV/AIDS 感染者的自我同情和羞耻感的作用。
AIDS Care. 2021 Jun;33(6):818-826. doi: 10.1080/09540121.2020.1769836. Epub 2020 May 23.
4
Shame, stigma, HIV: philosophical reflections.羞耻、污名与艾滋病病毒:哲学思考
Med Humanit. 2017 Dec;43(4):225-230. doi: 10.1136/medhum-2016-011179. Epub 2017 Aug 8.
5
Health-related shame: an affective determinant of health?与健康相关的羞耻感:健康的情感决定因素?
Med Humanit. 2017 Dec;43(4):257-263. doi: 10.1136/medhum-2017-011186. Epub 2017 Jun 8.
7
Shame among people living with HIV: a literature review.艾滋病毒感染者的羞耻感:文献综述。
AIDS Care. 2016;28(1):87-91. doi: 10.1080/09540121.2015.1066749. Epub 2015 Aug 21.
8
The phenomenology of shame in the clinical encounter.临床问诊中羞耻感的现象学
Med Health Care Philos. 2015 Nov;18(4):567-76. doi: 10.1007/s11019-015-9654-5.
9
Measuring HIV stigma: existing knowledge and gaps.衡量艾滋病污名:现有知识与差距
Psychol Health Med. 2006 Aug;11(3):335-45. doi: 10.1080/13548500600595178.

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