End-of-Life Care Research Group, Department Public Health and Primary Care, Vrije Universiteit Brussel (VUB) & Ghent University, Corneel Heymanslaan 10, 6K3, Ghent, Brussels, Belgium.
Bioethics Institute Ghent, Ghent University, Ghent, Belgium.
BMC Psychiatry. 2022 Jun 27;22(1):435. doi: 10.1186/s12888-022-04039-2.
Assisted dying for adults with psychiatric conditions (APC) is highly controversial but legally possible in a few countries, including Belgium. Previous research has suggested that the complex euthanasia assessment procedure may cause additional suffering in APC but may also induce positive experiences. This study reports on the impact of the euthanasia assessment procedure as experienced by APC on three counts: 1) their mental state, including death ideation; 2) their treatment trajectory; 3) their social relationships.
We performed an in-depth qualitative interview study with 16 APC in Flanders, Belgium, who had voiced a euthanasia request between 2016-2020. Thematic coding was used.
We interviewed 16 APC. Euthanasia assessment procedures brought out a plethora of experiences in APC, both favourable and unfavourable. Whereas thoughts of suicide remain present to a certain extent, being in the assessment procedure allows some APC to reconsider alternatives towards life, and also to attempt new treatment options. However, many APC experience ambivalence about the supposedly inherent desirability and dignity in euthanasia. Worries also surfaced about the rationale behind and effects of involvement of APCs' social circle, and about the impact it could have on them.
Further research, including other stakeholder perspectives, is recommended with a view to maximising favourable and minimising unfavourable impacts for all involved. In clinical practice attention to these impacts is paramount, and clear communication and management of expectations between physician and patient, seems appropriate to address the many ambivalent experiences that accompany APC during the euthanasia assessment procedure. Policy attention could in this regard go to clarifying certain sources of ambivalence and issues that are insufficiently addressed, such as modalities of relatives' involvement.
为患有精神疾病的成年人提供辅助死亡(APC)在一些国家是极具争议的,但在法律上是可行的,包括比利时。先前的研究表明,复杂的安乐死评估程序可能会给 APC 带来额外的痛苦,但也可能带来积极的体验。本研究报告了 APC 对安乐死评估程序的影响,包括:1)他们的精神状态,包括死亡意念;2)他们的治疗轨迹;3)他们的社会关系。
我们在比利时佛兰德斯对 16 名 APC 进行了深入的定性访谈研究,他们在 2016 年至 2020 年间表达了安乐死请求。使用主题编码进行分析。
我们采访了 16 名 APC。安乐死评估程序在 APC 中引发了大量的体验,既有有利的,也有不利的。虽然自杀的想法仍然存在一定程度,但处于评估程序中,一些 APC 可以重新考虑生命的替代方案,并尝试新的治疗选择。然而,许多 APC 对安乐死中所谓的固有可取性和尊严感到矛盾。他们还对涉及 APC 社交圈的理由和影响表示担忧,以及对他们可能产生的影响表示担忧。
建议进行进一步的研究,包括其他利益相关者的观点,以最大限度地提高所有相关方的有利影响,减少不利影响。在临床实践中,关注这些影响至关重要,医生和患者之间进行清晰的沟通和管理预期,似乎是解决 APC 在安乐死评估过程中伴随的许多矛盾体验的合适方法。在这方面,政策关注可以澄清某些矛盾的来源和未得到充分解决的问题,例如亲属参与的方式。