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自闭症儿童照顾者的休闲、就业、社区参与和生活质量:范围综述。

Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review.

机构信息

Latrobe University, Australia.

出版信息

Autism. 2022 Nov;26(8):1916-1930. doi: 10.1177/13623613221105836. Epub 2022 Jun 28.

Abstract

We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them.

摘要

我们在广泛的学术期刊中搜索了关于自闭症儿童照顾者在与休闲、社会、社区和就业相关的活动中的参与水平以及参与可能对照顾者生活质量产生的影响的已发表信息。总的来说,我们发现养育自闭症儿童的影响是广泛的,照顾者通常将孩子的需求置于自己的需求之上,特别是在职业参与方面,这会影响他们的生活质量。研究结果还强调需要进一步研究以调查自闭症儿童照顾者的体验以及参与和生活质量之间的关系,因为研究结果可以为他们提供更好的支持提供信息。

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