Safe Place: The Center for Child Protection and Health, PolicyLab, Center for Pediatric Effectiveness and Division of General Pediatrics, Children's Hospital of Philadelphia, 34th Street and Civic Center Boulevard, Philadelphia, PA 19104, United States.
Department of Pediatrics, Division of Child Protection and Family Health, University of Utah, Salt Lake City, UT 84115, United States; The Center for Safe and Healthy Families, Primary Children's Hospital, Salt Lake City, UT 84115, United States.
Child Abuse Negl. 2022 Sep;131:105653. doi: 10.1016/j.chiabu.2022.105653. Epub 2022 Jun 27.
The pediatric subspecialty of Child Abuse Pediatrics (CAP) was certified by the American Board of Medical Subspecialties in 2006. Relative to its impact on pediatric health, CAP-focused research has been relatively under-funded. Multi-center networks related to CAP-focused research have made important advances, but have been limited in scope and duration. CAPNET is multi-center network whose mission is to support CAP-focused research.
To describe the rationale, development, and scope of the CAPNET research network infrastructure, the CAPNET data registry and associated data resources.
Based on existing priorities for CAP-focused research, we used consensus building and iterative testing to establish inclusion criteria, common data elements, data quality assurance, and data sharing processes for children with concerns of physical abuse.
We describe the rationale, methods and intended scope for the development of the CAPNET research network and data registry. CAPNET is currently abstracting data for children <10 years (120 months) old who undergo sub-specialty evaluation for physical abuse at 10 US pediatric centers (approximately 4000 evaluations/year total) using an online data capture form. Data domains include: demographics; visit timing and providers, medical/social history, presentation, examination findings, laboratory and radiographic testing, diagnoses, outcomes, and data for contact children. We describe the methods and criteria for collecting and validating data which are broadly available to CAP investigators.
CAPNET represents a new data resource for the CAP research community and will increase the quantity and quality of CAP-focused research.
儿科虐待儿科学（CAP）于 2006 年由美国医学专科委员会认证。相对于其对儿科健康的影响，专注于 CAP 的研究相对资金不足。与 CAP 相关的多中心网络在研究方面取得了重要进展，但范围和持续时间有限。CAPNET 是一个多中心网络，其使命是支持专注于 CAP 的研究。
描述 CAPNET 研究网络基础设施、CAPNET 数据注册中心和相关数据资源的基本原理、开发和范围。
基于 CAP 相关研究的现有优先事项，我们使用共识建立和迭代测试来确定纳入标准、共同数据元素、数据质量保证和有身体虐待问题儿童的数据共享流程。
我们描述了 CAPNET 研究网络和数据注册中心的发展的基本原理、方法和预期范围。CAPNET 目前正在使用在线数据捕获表，为 10 家美国儿科中心接受身体虐待亚专科评估的 <10 岁（120 个月）儿童（每年总计约 4000 次评估）提取数据。数据域包括：人口统计学；就诊时间和提供者、医疗/社会史、表现、检查结果、实验室和放射学检查、诊断、结果以及接触儿童的数据。我们描述了收集和验证数据的方法和标准，这些数据对 CAP 研究人员广泛可用。
CAPNET 代表了 CAP 研究界的一个新的数据资源，将增加 CAP 研究的数量和质量。
