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揭示反动关怀:加泰罗尼亚成年严重精神障碍患者的母亲照料者的经历。

Unraveling Reactionary Care: The Experience of Mother-Caregivers of Adults with Severe Mental Disorders in Catalonia.

机构信息

Medical Anthropology Research Center, Rovira i Virgili University, Campus Catalunya Avinguda Catalunya, 35, 43002, Tarragona, Catalonia, Spain.

Department of Social Work, National Distance Education University, c/Calle Obispo Trejo, 2, 28040, Madrid, Spain.

出版信息

Cult Med Psychiatry. 2023 Sep;47(3):790-813. doi: 10.1007/s11013-022-09788-z. Epub 2022 Jul 2.

Abstract

In most Mediterranean countries, people diagnosed with severe mental disorders (SMDs) are typically cared for by the mother, causing a significant burden on people in this family role. Based on a broader mental health participatory action and qualitative research carried out in Catalonia (Spain) of 12 in-depth interviews and 3 focus groups, this article analyses the mother-caregivers' experience in the domestic space. The results show that patients and caregivers are engaged in a relationship of "nested dependencies", which create social isolation. This produces the conditions of "reactionary care", practices that limit the autonomy of those affected and that reproduce forms of disciplinary psychiatric institutions. We conclude that both institutional violence derived from economic rationality and that which stems from the gender mandate feed off each other into the domestic sphere. This research argues for placing care at the center of clinical practice and shows the need to consider the structural forces shaping it.

摘要

在大多数地中海国家,被诊断患有严重精神障碍(SMD)的人通常由母亲照顾,这给担任这一家长角色的人带来了巨大的负担。本文基于在西班牙加泰罗尼亚开展的一项更广泛的心理健康参与行动和定性研究,该研究包括 12 次深度访谈和 3 个焦点小组,分析了母亲照顾者在家庭空间中的体验。研究结果表明,患者和照顾者之间存在一种“嵌套依赖”的关系,这种关系导致了社会孤立。这就产生了“反动照顾”的条件,这种照顾限制了受影响者的自主权,并复制了纪律精神病院的形式。我们的结论是,源于经济理性的机构暴力和源于性别授权的暴力相互助长,蔓延到了家庭领域。这项研究主张将护理置于临床实践的中心,并表明需要考虑塑造它的结构性力量。

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Caregiving as moral experience.作为道德体验的护理工作。
Lancet. 2012 Nov 3;380(9853):1550-1. doi: 10.1016/s0140-6736(12)61870-4.
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The cost of caring: the relative with schizophrenia.护理的代价:精神分裂症患者的亲属
Scand J Caring Sci. 2010 Dec;24(4):817-23. doi: 10.1111/j.1471-6712.2010.00782.x.

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