Stone Meredith, Kokanovic Renata, Callard Felicity, Broom Alex F
Social and Global Studies Centre, School of Global, Urban and Social Studies, RMIT University, Melbourne, Victoria, Australia.
Royal Hospital for Women, Sydney, NSW, Australia.
Med Humanit. 2020 Mar;46(1):62-72. doi: 10.1136/medhum-2018-011521. Epub 2019 Jul 30.
Supported decision-making has become popular among policymakers and mental health advocates as a means of reducing coercion in mental healthcare. Nevertheless, users of psychiatric services often seem equivocal about the value of supported decision-making initiatives. In this paper we explore why such initiatives might be rejected or ignored by the would-be beneficiaries, and we reflect on broader implications for care and coercion. We take a critical medical humanities approach, particularly through the lens of entanglement. We analyse the narratives of 29 people diagnosed with mental illness, and 29 self-identified carers speaking of their experiences of an Australian mental healthcare system and of their views of supported decision-making. As a scaffolding for our critique we consider two supported decision-making instruments in the 2014 Victorian Mental Health Act: the advance statement and the nominated person. These instruments presuppose that patients and carers endorse a particular set of relationships between the agentic self and illness, as well as between patient, carer and the healthcare system. Our participant narratives instead conveyed 'entangled' relations, which we explore in three sections. In the first we show how ideas about fault and illness often coexisted, which corresponded with shifting views on the need for more versus agency for patients. In the second section, we illustrate how family carers struggled to embody the supported decision-making ideal of the independent yet altruistic nominated person, and in the final section we suggest that both care and coercion were narrated as existing across informal/formal care divisions. We conclude by reflecting on how these dynamic relations complicate supported decision-making projects, and prompt a rethink of how care and coercion unfold in contemporary mental healthcare.
支持性决策制定已在政策制定者和心理健康倡导者中流行起来,成为减少精神卫生保健中强制手段的一种方式。然而,精神科服务的使用者似乎常常对支持性决策制定举措的价值持模棱两可的态度。在本文中,我们探讨了这类举措为何可能被潜在受益者拒绝或忽视,并思考了其对护理和强制手段的更广泛影响。我们采用批判性医学人文学方法,特别是通过纠缠的视角。我们分析了29名被诊断患有精神疾病的人和29名自称护理人员的叙述,他们讲述了自己在澳大利亚精神卫生保健系统中的经历以及对支持性决策制定的看法。作为我们批评的框架,我们考虑了2014年《维多利亚州精神健康法》中的两种支持性决策制定工具:预先声明和指定人员。这些工具预先假定患者和护理人员认可在能动自我与疾病之间,以及患者、护理人员与医疗保健系统之间的特定关系。相反,我们的参与者叙述传达了“纠缠”的关系,我们将在三个部分中进行探讨。在第一部分中,我们展示了关于过错和疾病的观念如何常常并存,这与对患者更多能动性需求的不断变化的看法相对应。在第二部分中,我们说明了家庭护理人员如何努力体现独立但利他的指定人员这一支持性决策制定理想,在最后一部分中,我们指出护理和强制手段都被叙述为存在于非正式/正式护理划分之中。我们通过思考这些动态关系如何使支持性决策制定项目变得复杂,并促使人们重新思考护理和强制手段在当代精神卫生保健中是如何展开的来得出结论。