O'Leary Catherine, Edwards Vivien, Hardcastle Katherine A, McCulloch Anna, Duckers Jamie M
All Wales Adult Cystic Fibrosis Service, Cardiff and Vale University Health Board, Llandough, UK.
Policy and International Health, WHO Collaborating Centre on Investment for Health & Well-being, Public Health Wales, Wrexham, UK.
Psychol Res Behav Manag. 2022 Jun 28;15:1601-1605. doi: 10.2147/PRBM.S322425. eCollection 2022.
This exploratory study examines the prevalence of adverse childhood experiences (ACEs) in adults with cystic fibrosis (CF).
Childhood exposure to 16 ACEs was measured during an annual review assessment (N = 80).
CF patients (n = 80) attending the All Wales Adult CF Service for a routine annual review assessment completed an adapted version of the Centers for Disease Control and Prevention (CDC) short-form ACE questionnaire alongside measures of psychological well-being.
In this sample, 65 (78%) reported at least one type of childhood adversity and 11 (14%) experienced four or more ACEs. Parental divorce or separation and verbal abuse were the most frequently reported ACEs. Illness related trauma in childhood was also prevalent with 52 (64%) reporting having experienced a painful or frightening medical procedure and 23 (28%) feeling forced to have treatment or a procedure.
Individuals with CF reported a number of childhood traumas including trauma relating to medical procedures. Those with a history of ACEs may have increased risks of emotional and physical difficulties and may benefit from additional support from the CF psychosocial team.
本探索性研究调查了成年囊性纤维化（CF）患者童年不良经历（ACEs）的发生率。
在年度复查评估期间测量童年时期暴露于16种ACEs的情况（N = 80）。
参加全威尔士成人CF服务进行常规年度复查评估的CF患者（n = 80）完成了一份改编版的美国疾病控制与预防中心（CDC）简版ACE问卷以及心理健康状况测量。
在这个样本中，65人（78%）报告至少有一种童年逆境，11人（14%）经历了四种或更多的ACEs。父母离婚或分居以及言语虐待是报告最多的ACEs。童年时期与疾病相关的创伤也很普遍，52人（64%）报告经历过痛苦或可怕的医疗程序，23人（28%）感觉被迫接受治疗或程序。
CF患者报告了许多童年创伤，包括与医疗程序相关的创伤。有ACEs病史的人可能有更高的情感和身体困难风险，可能会从CF心理社会团队的额外支持中受益。
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