肌萎缩侧索硬化症：针对患者及其家属的心理社会干预措施。

Amyotrophic lateral sclerosis: psychosocial interventions for patients and their families.

作者信息

Sebring D L, Moglia P

出版信息

Health Soc Work. 1987 Spring;12(2):113-20. doi: 10.1093/hsw/12.2.113.

DOI:10.1093/hsw/12.2.113

Abstract

Because amyotrophic lateral sclerosis (ALS) differs in many of its characteristics from other progressive and fatal diseases, much of the literature on terminal or paralyzing illness only partially describes the experience of ALS patients. This study details the psychosocial impact of the disease for patients and their families and concludes with specific recommendations on intervention for health care and for social service providers.

摘要

由于肌萎缩侧索硬化症（ALS）在许多特征上与其他进行性致命疾病不同，许多关于晚期疾病或瘫痪性疾病的文献仅部分描述了ALS患者的经历。本研究详细阐述了该疾病对患者及其家庭的社会心理影响，并针对医疗保健和社会服务提供者的干预提出了具体建议。