在影响 ALS 的人群的姑息治疗中进行早期心理社会支持的路线图——减轻痛苦、增强韧性，为及时提供跨诊断心理社会关怀奠定基础。

A roadmap for early psychosocial support in palliative care for people impacted by ALS-reducing suffering, building resiliency, and setting the stage for delivering timely transdiagnostic psychosocial care.

机构信息

Center for Health Outcomes and Interdisciplinary Research (CHOIR), Department of Psychiatry, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA.

Department of Neurology, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA.

出版信息

Transl Behav Med. 2023 Sep 12;13(9):722-726. doi: 10.1093/tbm/ibad024.

DOI:10.1093/tbm/ibad024

PMID:37043596

Abstract

This commentary describes the current state of psychosocial care for people with amyotrophic lateral sclerosis and their caregivers. We provide recommendations for developing a roadmap for future research based on existing literature and our group's clinical and research experience to inform next steps to expand evidence-based psychosocial care for people with amyotrophic lateral sclerosis and their caregivers, with potential implications for a range of advanced illnesses.

摘要

本述评描述了目前针对肌萎缩侧索硬化症患者及其照护者的心理社会照护状况。我们根据现有文献以及我们小组的临床和研究经验，为制定未来研究路线图提供了建议，旨在为扩大肌萎缩侧索硬化症患者及其照护者的循证心理社会照护提供信息，为一系列晚期疾病提供潜在影响。