Center for Health Outcomes and Interdisciplinary Research (CHOIR), Department of Psychiatry, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA.
Department of Neurology, Massachusetts General Hospital (MGH)/Harvard Medical School (HMS), Boston, MA, USA.
Transl Behav Med. 2023 Sep 12;13(9):722-726. doi: 10.1093/tbm/ibad024.
This commentary describes the current state of psychosocial care for people with amyotrophic lateral sclerosis and their caregivers. We provide recommendations for developing a roadmap for future research based on existing literature and our group's clinical and research experience to inform next steps to expand evidence-based psychosocial care for people with amyotrophic lateral sclerosis and their caregivers, with potential implications for a range of advanced illnesses.
本述评描述了目前针对肌萎缩侧索硬化症患者及其照护者的心理社会照护状况。我们根据现有文献以及我们小组的临床和研究经验,为制定未来研究路线图提供了建议,旨在为扩大肌萎缩侧索硬化症患者及其照护者的循证心理社会照护提供信息,为一系列晚期疾病提供潜在影响。