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提高生物库的公众信任:2021 年 ISBER 年会的圆桌讨论。

Improving Public Trust in Biobanking: Roundtable Discussions from the 2021 ISBER Annual Meeting.

机构信息

Department of Biobank, National Liver Disease Biobank, ILBS, New Delhi, India.

Victorian Cancer Biobank, Melbourne, Australia.

出版信息

Biopreserv Biobank. 2023 Jun;21(3):308-312. doi: 10.1089/bio.2022.0046. Epub 2022 Jul 12.

DOI:10.1089/bio.2022.0046
PMID:35834557
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10398726/
Abstract

Biobanking is a relatively newly recognized and innovative branch of science, which includes the collection of samples and associated data from hospitals, diagnostic centers, and voluntary donations for biomedical and environmental research. It involves diverse stakeholders at the junction of society, science, ethics, law, and politics. A key element in the success of a biobank is the trust and support of public donors, clinicians, and scientists. To achieve trust, it is important to implement strategies that can increase biobank awareness in common people, and different types of communities. Biobank laws and regulations and transparent governance by the biobanks are also crucial to achieving public trust.

摘要

生物库是一门相对较新的科学分支,它包括从医院、诊断中心和自愿捐赠者那里收集生物医学和环境研究用的样本和相关数据。它涉及到社会、科学、伦理、法律和政治交汇点的不同利益相关者。生物库成功的一个关键因素是公众捐赠者、临床医生和科学家的信任和支持。为了获得信任,实施可以提高生物库在普通民众和不同类型社区中的知名度的策略非常重要。生物库法律和法规以及生物库的透明治理对于获得公众信任也至关重要。

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Biomark Insights. 2020 Oct 19;15:1177271920965522. doi: 10.1177/1177271920965522. eCollection 2020.
2
Transparency About Governance Contributes to Biobanks' Trustworthiness: Call for Action.透明度有助于生物库的信誉:行动呼吁。
Biopreserv Biobank. 2021 Feb;19(1):83-85. doi: 10.1089/bio.2020.0057. Epub 2020 Oct 30.
3
Development of a Biobank from a Legacy Collection in Universitas Gadjah Mada, Indonesia: Proposed Approach for Centralized Biobank Development in Low-Resource Institutions.印度尼西亚加查马达大学利用遗留样本库建立生物样本库:低资源机构集中式生物样本库建设的建议方法
Biopreserv Biobank. 2019 Oct;17(5):387-394. doi: 10.1089/bio.2018.0125. Epub 2019 Apr 19.
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The role of trust in global health research collaborations.信任在全球健康研究合作中的作用。
Bioethics. 2019 May;33(4):495-501. doi: 10.1111/bioe.12536. Epub 2018 Nov 27.
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Biobanking initiatives to develop a national liver disease biobank facility in India.在印度开展建立国家肝脏疾病生物样本库设施的生物样本库计划。
Per Med. 2018 Nov;15(6):531-541. doi: 10.2217/pme-2018-0019. Epub 2018 Nov 5.
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Current practices for access, compensation, and prioritization in biobanks. Results from an interview study.生物银行的获取、补偿和优先排序的现行做法。一项访谈研究的结果。
Eur J Hum Genet. 2018 Nov;26(11):1572-1581. doi: 10.1038/s41431-018-0228-x. Epub 2018 Aug 8.
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Publicly-funded biobanks and networks in East Asia.东亚的公共资助生物样本库和网络。
Springerplus. 2016 Jul 15;5(1):1080. doi: 10.1186/s40064-016-2723-2. eCollection 2016.
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The Future of Biobanking: A Conceptual Look at How Biobanks Can Respond to the Growing Human Biospecimen Needs of Researchers.生物样本库的未来:关于生物样本库如何应对研究人员对人类生物样本日益增长的需求的概念性探讨。
Adv Exp Med Biol. 2015;864:11-27. doi: 10.1007/978-3-319-20579-3_2.
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INA-RESPOND: a multi-centre clinical research network in Indonesia.INA-RESPOND:印度尼西亚的一个多中心临床研究网络。
Health Res Policy Syst. 2015 Jul 29;13:34. doi: 10.1186/s12961-015-0024-9.
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