Janicki Matthew P, Hendrix James A, McCallion Philip
Department of Disability and Human Development University of Illinois Chicago Illinois USA.
LuMind IDSC Foundation Burlington Massachusetts USA.
Alzheimers Dement (Amst). 2022 Jul 8;14(1):e12335. doi: 10.1002/dad2.12335. eCollection 2022.
The Neuroatypical Conditions Expert Consultative Panel composed of numerous clinical and academic experts was convened to examine barriers to the examination of cognitive impairment in adults with a variety of neuroatypical conditions. Neuroatypical conditions affect normative intellectual development and function (such as intellectual disability and intellectual disability with conjoint psychiatric conditions), thought, moods, and cognition (such as severe mental illness), communication functions (such as the autism spectrum and hearing/vision impairments), and brain and motor function (such as cerebral palsy and acquired or traumatic brain injury). The panel concluded that current federal guidance for the assessment of cognitive impairment for mild cognitive impairment (MCI) or dementia does not sufficiently include information as to how to assess such adults. In addition, it concluded that adults with these conditions (1) challenge clinicians when attempting to discern current behavior and function from that which was pre-existing; (2) often have inherent comprehension and oral communication difficulties, motor task performance impediments, and difficulty with visuals; and (3) pose difficulties when assessed with standardized dementia measures and can benefit from the use of specialized instruments. The panel recommended that federal guidance be broadened to include adaptations of assessment practices to accommodate neuroatypical conditions; that educational packs be developed for clinicians about such conditions and on detecting and diagnosing MCI or dementia; and that research be expanded to produce more evidence-based information on both assessing adults with neuroatypical conditions for later-life adult cognitive diseases/disorders and planning post-diagnostic care.
由众多临床和学术专家组成的神经非典型病症专家咨询小组召开会议,探讨对患有各种神经非典型病症的成年人进行认知障碍检查时存在的障碍。神经非典型病症会影响正常的智力发育和功能(如智力残疾以及伴有联合精神疾病的智力残疾)、思维、情绪和认知(如严重精神疾病)、沟通功能(如自闭症谱系障碍以及听力/视力障碍)以及大脑和运动功能(如脑瘫以及获得性或创伤性脑损伤)。该小组得出结论,目前联邦政府针对轻度认知障碍(MCI)或痴呆症的认知障碍评估指南并未充分涵盖如何评估此类成年人的信息。此外,该小组得出结论,患有这些病症的成年人:(1)在临床医生试图区分当前行为和功能与既往行为和功能时对其构成挑战;(2)通常存在内在的理解和口头沟通困难、运动任务执行障碍以及视觉方面的困难;(3)在使用标准化痴呆症测量方法进行评估时存在困难,并且可以从使用专门的工具中受益。该小组建议扩大联邦指南的范围,以纳入评估方法的调整,以适应神经非典型病症;为临床医生编写关于此类病症以及检测和诊断MCI或痴呆症的教育资料包;并扩大研究范围,以产生更多基于证据的信息,用于评估患有神经非典型病症的成年人是否患有晚年成人认知疾病/障碍以及规划诊断后的护理。