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胎盘植入谱系疾病患者对护理、结局和后果的感知:一项基于调查的研究。

Patient Perception of Care, Outcomes, and Consequences from Placenta Accreta Spectrum: A Survey-Based Study.

机构信息

Department of Obstetrics and Gynecology, Beth Israel Deaconess Medical Center, Boston, Massachusetts.

Department of Obstetrics, Gynecology, and Reproductive Biology, Harvard Medical School, Boston, Massachusetts.

出版信息

Am J Perinatol. 2024 May;41(S 01):e486-e493. doi: 10.1055/a-1905-5079. Epub 2022 Jul 20.

DOI:10.1055/a-1905-5079
PMID:35858652
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10280780/
Abstract

OBJECTIVE

Placenta accreta spectrum (PAS) is an obstetric diagnosis that carries significant risks. However, little is known about patient perceptions of care. This study was conducted to describe the patient experience, reported outcomes, and assess geographical variation in PAS care in the United States.

STUDY DESIGN

Partnering with a PAS patient advocacy organization, we conducted an online survey of PAS patients. Perceptions of care and outcomes, and geographic variation were described.

RESULTS

We received 108 responses (69% response rate); 103 respondents delivered in the United States. Demographic characteristics were similar across each region. Most (67%) reported at least one prior cesarean delivery and 53% reported placenta previa in the PAS pregnancy. Over half (63%) reported an antenatal suspicion of PAS and 66% of those respondents reported changing their delivery hospital as a result of their antenatal diagnosis. Though not statistically significant, both showed variability across regions (both ≥0.60). Seventy-five percent of respondents with antenatal diagnosis reported their pregnancy was managed by a dedicated PAS care team, which did not differ by region ( = 0.80). A majority of respondents (75%) felt their PAS care team was prepared for their delivery; this too did not vary across regions ( = 0.97). Many respondents reported at least one physical (63%) or mental health (17%) adverse outcome as a result of their PAS pregnancy.

CONCLUSION

As reported by prior PAS patients, perception of care and outcomes are overall favorable. There are long-term physical and mental adverse consequences reported. Geographical variation is mixed, however, national guidelines are predominately followed.

KEY POINTS

· Patient perceptions of care and outcomes are overall positive and favorable.. · Long lasting physical and mental health consequence from PAS pregnancies are commonly seen.. · Multidisciplinary care is widely adopted for PAS pregnancies..

摘要

目的

胎盘植入谱系(PAS)是一种具有重大风险的产科诊断。然而,人们对患者对护理的看法知之甚少。本研究旨在描述美国 PAS 患者的体验、报告结果,并评估 PAS 护理的地域差异。

研究设计

与 PAS 患者倡导组织合作,我们对 PAS 患者进行了在线调查。描述了对护理的看法和结果,以及地域差异。

结果

我们收到了 108 份回复(69%的回复率);103 名受访者在美国分娩。每个地区的人口统计学特征相似。大多数(67%)报告至少有一次剖宫产史,53%报告 PAS 妊娠时胎盘前置。超过一半(63%)报告产前怀疑 PAS,其中 66%的受访者因产前诊断而改变了分娩医院。尽管没有统计学意义,但这两个指标在各个地区都存在差异(均≥0.60)。有产前诊断的 75%的受访者报告他们的妊娠由专门的 PAS 护理团队管理,这与地区无关( = 0.80)。大多数受访者(75%)表示他们的 PAS 护理团队为分娩做好了准备;这在各个地区也没有差异( = 0.97)。许多受访者报告说,由于 PAS 妊娠,他们至少经历了一次身体(63%)或心理健康(17%)不良后果。

结论

正如之前的 PAS 患者所报告的,对护理和结果的看法总体上是积极的。报告称存在长期的身体和心理健康不良后果。然而,地域差异是混合的,但是,主要遵循国家指南。

关键点

·患者对护理和结果的看法总体上是积极和有利的。·PAS 妊娠后常见长期的身心健康后果。·多学科护理广泛应用于 PAS 妊娠。

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Am J Obstet Gynecol. 2022 Mar;226(3):405.e1-405.e16. doi: 10.1016/j.ajog.2021.09.021. Epub 2021 Sep 23.
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Quality of life and sexual function after a pregnancy complicated by placenta accreta spectrum.胎盘植入谱系疾病妊娠后生活质量和性功能
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Special Report of the Society for Maternal-Fetal Medicine Placenta Accreta Spectrum Ultrasound Marker Task Force: Consensus on definition of markers and approach to the ultrasound examination in pregnancies at risk for placenta accreta spectrum.母胎医学协会胎盘植入谱系超声标志物特别工作组特别报告:胎盘植入谱系风险妊娠中标志物定义及超声检查方法的共识
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