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改善成年尼日利亚癌症患者及其家庭护理人员与健康相关的生活质量:干预措施的制定。

Improving the health-related quality of life of adult Nigerians living with cancer and their family caregivers: intervention development.

作者信息

Gabriel Israel, Creedy Debra, McGuire Amanda, Coyne Elisabeth

机构信息

School of Nursing and Midwifery, Griffith University, Logan Campus, Meadowbrook, Queensland, 4131, Australia.

Transforming Maternity Care Collaborative, School of Nursing and Midwifery, Griffith University, Brisbane, Queensland, Australia.

出版信息

Pilot Feasibility Stud. 2022 Jul 20;8(1):151. doi: 10.1186/s40814-022-01117-w.

DOI:10.1186/s40814-022-01117-w
PMID:35859142
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9297656/
Abstract

BACKGROUND

Evidence for the effectiveness of interventions aimed at improving the health-related quality of life of people living with cancer and/or family members is compelling. However, most interventional research has been conducted in high-income countries, and no intervention had been tested in low-income countries such as Nigeria. It is critical to design a culturally theory-based intervention in a resource-poor setting to address the needs and support coping strategies of cancer patients and their family caregivers.

METHODS

Theory, evidence, and practical issues were considered. The Medical Research Council framework for developing and evaluating complex interventions and Behaviour Change Wheel provided the framework for intervention design. Findings generated by a needs assessment of adult Nigerians with cancer and their family caregivers and relevant theories (the Spirituality and the Supportive Care Framework for Cancer) informed content development.

RESULTS

A theory-based, culturally tailored socio-spiritual intervention was developed to address the specific needs of adult Nigerians with cancer and their family caregivers. A 4-week intervention included strategies designed to improve social and spiritual support, information and health literacy, and health-related quality of life.

CONCLUSIONS

A systemic approach was used to conceptualise an evidence-based and theory-informed intervention tailored to address previously identified shortfalls in support available to adults living with cancer and their family caregivers, in Nigeria. If implemented and effective, such an intervention has the potential to improve the health-related quality of life of people living with cancer and their families in Nigeria.

摘要

背景

旨在改善癌症患者和/或其家庭成员健康相关生活质量的干预措施成效显著。然而,大多数干预研究是在高收入国家开展的,尚未在尼日利亚等低收入国家进行过干预测试。在资源匮乏的环境中设计一种基于文化理论的干预措施,以满足癌症患者及其家庭护理人员的需求并支持其应对策略,至关重要。

方法

考虑了理论、证据和实际问题。医学研究理事会关于开发和评估复杂干预措施的框架以及行为改变轮为干预设计提供了框架。对成年尼日利亚癌症患者及其家庭护理人员的需求评估结果以及相关理论(癌症的灵性与支持性护理框架)为内容开发提供了依据。

结果

开发了一种基于理论、文化适配的社会灵性干预措施,以满足成年尼日利亚癌症患者及其家庭护理人员的特定需求。为期4周的干预措施包括旨在改善社会和精神支持、信息及健康素养以及健康相关生活质量的策略。

结论

采用了一种系统方法来构思一种基于证据且理论依据充分的干预措施,该措施针对尼日利亚成年癌症患者及其家庭护理人员在支持方面先前发现的不足进行了量身定制。如果实施且有效,这种干预措施有可能改善尼日利亚癌症患者及其家庭的健康相关生活质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/431d39b00af1/40814_2022_1117_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/4c947c9e2891/40814_2022_1117_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/9247a84e4730/40814_2022_1117_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/431d39b00af1/40814_2022_1117_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/4c947c9e2891/40814_2022_1117_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/9247a84e4730/40814_2022_1117_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/79e4/9297656/431d39b00af1/40814_2022_1117_Fig3_HTML.jpg

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