School of Psychology, University of Adelaide, Adelaide, South Australia, Australia.
J Clin Nurs. 2023 Aug;32(15-16):4586-4598. doi: 10.1111/jocn.16465. Epub 2022 Jul 21.
To explore culturally and linguistically diverse men's experiences of support after perinatal death, including barriers and facilitators to support and how healthcare providers, systems and policies can best support families.
Many groups of culturally and linguistically diverse families in Australia are at higher risk of experiencing perinatal death. Culturally sensitive bereavement services are essential; however, there has been no previous research specifically examining culturally and linguistically diverse men's experiences of support following perinatal death.
Individual semi-structured interviews were completed with healthcare providers, community leaders and culturally and linguistically diverse men who had experienced a perinatal death in Australia (n = 16). Data were analysed using Thematic Analysis and COREQ guidelines were followed.
Men's need for support following perinatal death was associated with stigma, and shaped by culturally-relevant religion and ritual, and connection to community and family. Significant barriers to men seeking and gaining support included challenges with self-advocacy and navigating the woman-centred nature of perinatal care in Australia.
Culturally and linguistically diverse men's specific needs should be included in the development of policy and practice surrounding perinatal death. While perinatal bereavement care guidelines acknowledge the importance of culturally informed care following perinatal death, there remains a lack of culturally specific supports available, particularly for culturally and linguistically diverse men.
Specific recommendations from this research include increasing community liaison officers or cultural consultants in hospitals and support organisations; providing culturally and linguistically diverse support groups; adopting family-centred and father-inclusive language in all perinatal death support services and ensuring clear communication and targeted assistance for culturally and linguistically diverse men to self-advocate for their baby and access to support.
This study came out of consultation with community members and member checking of results was conducted to ensure adequate representation of participants' views.
探索围产期死亡后文化和语言多样化男性的支持体验，包括支持的障碍和促进因素，以及医疗保健提供者、系统和政策如何最好地为家庭提供支持。
澳大利亚许多文化和语言多样化的家庭群体面临更高的围产期死亡风险。提供敏感的丧亲服务至关重要；然而，以前没有专门研究围产期死亡后文化和语言多样化男性支持体验的研究。
与澳大利亚经历过围产期死亡的医疗保健提供者、社区领袖和文化及语言多样化男性进行了个人半结构化访谈（n=16）。使用主题分析对数据进行分析，并遵循 COREQ 指南。
男性在围产期死亡后对支持的需求与耻辱感有关，同时受到与文化相关的宗教和仪式以及与社区和家庭的联系的影响。男性寻求和获得支持的主要障碍包括自我倡导和适应澳大利亚以女性为中心的围产期护理的挑战。
应该将文化和语言多样化男性的特殊需求纳入围产期死亡相关政策和实践的制定中。虽然围产期丧亲护理指南承认在围产期死亡后提供文化知情护理的重要性，但仍然缺乏可用的文化特定支持，特别是针对文化和语言多样化的男性。
这项研究的具体建议包括在医院和支持组织中增加社区联络官或文化顾问；提供文化和语言多样化的支持小组；在所有围产期死亡支持服务中采用以家庭为中心和包括父亲的语言；并确保为文化和语言多样化的男性提供清晰的沟通和有针对性的帮助，以自我倡导为他们的婴儿争取支持。
这项研究是在与社区成员协商的基础上进行的，对结果进行了成员检查，以确保参与者的观点得到充分代表。
