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妇女在怀孕期间的智力和发育障碍的正式和非正式支持。

Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy.

机构信息

Eliana Rosenthal, Lehigh University.

Susan L. Parish, Virginia Commonwealth University.

出版信息

Intellect Dev Disabil. 2022 Aug 1;60(4):261-272. doi: 10.1352/1934-9556-60.4.261.

Abstract

This article explores the role of formal and informal supports for women with intellectual and developmental disabilities (IDD) throughout their pregnancy, childbirth, and postpartum experiences. Data from qualitative interviews with women with IDD (n = 16) were analyzed. Results showed that formal supports aided in planning, transportation, advocacy, and providing emotional support throughout pregnancy. Informal supports helped with errands, comfort, and emotional encouragement. The community surrounding these women facilitated communication with providers, self-empowerment regarding health choices, and increased preparedness for parenthood. Findings indicate the importance of encouraging and sustaining both formal and informal supports during pregnancy, childbirth, and postpartum to improve pregnancy and parenting experiences for women with IDD.

摘要

本文探讨了在女性智力和发育障碍(IDD)整个怀孕、分娩和产后期间,正式和非正式支持的作用。对 16 名 IDD 女性的定性访谈数据进行了分析。结果表明,正式支持有助于在整个怀孕期间进行计划、交通、宣传和提供情感支持。非正式支持则帮助完成各种杂务、提供安慰和情感鼓励。这些女性周围的社区促进了与提供者的沟通,增强了她们在健康选择方面的自主权,并提高了她们为人父母的准备程度。研究结果表明,在怀孕期间、分娩期间和产后鼓励和维持正式和非正式支持的重要性,以改善 IDD 女性的怀孕和育儿体验。

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