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临终关怀中父母陪伴孩子的悲伤经历——一项质性综述方案

Grieving Experiences of Parents with Children in End-of-Life Care-A Qualitative Review Protocol.

作者信息

Correia Maria Eduarda, Melo Tânia, Nobre Joana

机构信息

Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), 1990-096 Lisboa, Portugal.

Health School, Polytechnic Institute of Portalegre, 7300-555 Portalegre, Portugal.

出版信息

Nurs Rep. 2022 Jun 22;12(3):426-430. doi: 10.3390/nursrep12030041.

Abstract

Parents that accompany their children in end-of-life care until death go through a devastating, complex and vulnerable situation, which is experienced in a unique way and with individual needs, given the specificity of the palliative care setting in which it occurs. This qualitative review aims to identify and synthesize the best evidence available on the grieving experiences of parents with children in end-of-life care in a palliative care setting. This qualitative review protocol is according to the review method proposed by the Joanna Briggs Institute. The results will enable us to identify how parents of children in end-of-life care in a palliative care setting experience their grieving process. This review will broaden the horizon of understanding of the specificities of the grieving experience of parents who have accompanied their children in end-of-life care until their death in a palliative care setting and promote research in this context. The results of the review will also allow the construction of an "", with the aim of identifying one's individuality in the grieving process. This protocol is registered at Open Science Framework.

摘要

在临终关怀中陪伴孩子直至死亡的父母,会经历一种毁灭性的、复杂且脆弱的处境,鉴于这种情况发生时姑息治疗环境的特殊性,他们会以独特的方式、带着个体需求去体验。本质性综述旨在识别并综合有关在姑息治疗环境中陪伴孩子接受临终关怀的父母悲伤经历的最佳现有证据。本质性综述方案遵循乔安娜·布里格斯研究所提出的综述方法。研究结果将使我们能够确定在姑息治疗环境中陪伴孩子接受临终关怀的父母如何经历他们的悲伤过程。本综述将拓宽对在姑息治疗环境中陪伴孩子直至死亡的父母悲伤经历特殊性的理解视野,并推动这方面的研究。综述结果还将有助于构建一个“”,目的是在悲伤过程中识别个体特性。本方案已在开放科学框架注册。

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