Thornton Rebecca, Nicholson Patricia, Harms Louise
J Obstet Gynecol Neonatal Nurs. 2019 May;48(3):351-360. doi: 10.1016/j.jogn.2019.02.001. Epub 2019 Apr 1.
To summarize and synthesize extant literature on memory making in bereavement care for parents who experience the death of a newborn and to identify opportunities for future research.
We conducted a systematic search of four health-related databases (MEDLINE Complete, CINAHL Complete, Embase, and PsychINFO) for original research in January 2019. We then conducted a manual search of the reference lists of all included articles and a citation search via Scopus.
Selection criteria initially included all original research articles available in English that related to parents' perceptions of perinatal or neonatal palliative care or bereavement care for parents after the death of a newborn. These criteria were refined as we developed familiarity with the available literature. Our initial screening of article titles and abstracts yielded 287 articles for full-text review. After full-text analysis, we included all 25 qualitative or mixed method research articles that met selection criteria.
We used a spreadsheet modeled on the Joanna Briggs Institute Review Guidelines (2015) for data extraction.
Available research was focused primarily on parents' perceptions of care during and after the death of their newborns. Memory making interventions emerged as significant elements of the experiences of bereaved parent. Several researchers examined parents' perceptions of specific memory making interventions, such as bereavement photography. Contact with the newborn, opportunities for caregiving, bereavement photography, and the collection or creation of mementos emerged as important elements of memory making. Parents also identified a need for guidance about each of these key strategies for memory making.
We identified few studies focused entirely on memory making as an intervention in the context of bereavement care for parents. However, memory making emerged as a recurring theme throughout qualitative and mixed method studies on parents' perceptions of perinatal or neonatal end-of-life care. Further research is required to provide evidence to guide memory making interventions for bereaved parents who experience the death of a newborn.
总结和综合关于为经历新生儿死亡的父母提供哀伤护理时记忆留存的现有文献，并确定未来研究的机会。
2019年1月，我们对四个健康相关数据库（MEDLINE Complete、CINAHL Complete、Embase和PsychINFO）进行了系统检索，以查找原始研究。然后，我们手动检索了所有纳入文章的参考文献列表，并通过Scopus进行了引文检索。
最初的选择标准包括所有以英文发表的与父母对围产期或新生儿姑息治疗的看法或新生儿死亡后父母的哀伤护理相关的原始研究文章。随着我们对现有文献的熟悉，这些标准得到了完善。我们对文章标题和摘要的初步筛选产生了287篇文章以供全文审查。经过全文分析，我们纳入了所有符合选择标准的25篇定性或混合方法研究文章。
我们使用了一个基于乔安娜·布里格斯研究所综述指南（2015年）的电子表格进行数据提取。
现有研究主要集中在父母对新生儿死亡期间及之后护理的看法上。记忆留存干预成为哀伤父母经历的重要组成部分。几位研究人员研究了父母对特定记忆留存干预的看法，如哀伤摄影。与新生儿接触、护理机会、哀伤摄影以及纪念品的收集或制作成为记忆留存的重要元素。父母们还指出需要针对这些关键记忆留存策略中的每一项提供指导。
我们发现很少有研究完全聚焦于将记忆留存作为对经历新生儿死亡的父母进行哀伤护理的一种干预措施。然而，在关于父母对围产期或新生儿临终护理看法的定性和混合方法研究中，记忆留存成为一个反复出现的主题。需要进一步研究以提供证据，指导为经历新生儿死亡的哀伤父母进行记忆留存干预。
