Lee Abigail Rebecca, McDermott Orii, Guo Boliang, Roe James, Orrell Martin
Mental Health and Clinical Neurosciences Academic Unit, School of Medicine, Institute of Mental Health, University of Nottingham - Jubilee Campus, Nottingham, United Kingdom.
JMIR Res Protoc. 2022 Jul 27;11(7):e33881. doi: 10.2196/33881.
With the rapid increase in the prevalence of dementia in the United Kingdom and beyond, the emotional, social, and economic burden on individuals, families, and health care services continues to rise. Currently, interventions that enable people living with dementia to better manage their condition and achieve a good quality of life are needed.
This study aimed to explore how the Promoting Independence in Dementia (PRIDE) app can promote and support the self-management of people living with mild dementia.
Feasibility of a pre-post study design incorporating the Reach, Effectiveness, Adoption, Implementation, and Maintenance framework will be studied. We will use up to 6 National Health Service Trusts as research sites and the Join Dementia Research website and accept self-referrals to recruit 60 to 90 people living with mild dementia. Participants will complete the PRIDE app intervention over 8 weeks with support from a dementia adviser facilitator. Measures exploring mood, physical well-being, and quality of life will be collected at baseline and at follow-ups at 3 and 6 months. Facilitators and National Health Service staff will be invited to complete interviews shortly after the intervention phase.
Data collection began in June 2021 and is predicted to cease by the end of August 2022. Analysis of the quantitative measures will explore the impact of the PRIDE app on participants' independence, mood, and quality of life. Interview data will discuss participant experiences, how the use of the app affected them, and if it has the potential to be successfully implemented and maintained in dementia services.
This study will show the potential reach, effectiveness, and adoption of the PRIDE app intervention in the lives of people with mild dementia. The findings from this study will inform future research on the PRIDE app and any further developments to improve its effectiveness.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/33881.
随着英国及其他地区痴呆症患病率的迅速上升，个人、家庭和医疗服务所承受的情感、社会和经济负担持续加重。目前，需要采取干预措施，使痴呆症患者能够更好地管理自身病情并实现高质量生活。
本研究旨在探讨“促进痴呆症患者独立（PRIDE）”应用程序如何促进和支持轻度痴呆症患者的自我管理。
将采用纳入“覆盖范围、有效性、采用率、实施情况和维持情况”框架的前后对照研究设计，研究其可行性。我们将利用多达6个国民保健服务信托机构作为研究地点，并通过“加入痴呆症研究”网站接受自我推荐，招募60至90名轻度痴呆症患者。参与者将在痴呆症顾问协助下，在8周内完成PRIDE应用程序干预。将在基线以及3个月和6个月随访时收集探索情绪、身体健康和生活质量的指标。将邀请协助者和国民保健服务工作人员在干预阶段结束后不久完成访谈。
数据收集于2021年6月开始，预计于2022年8月底结束。对定量指标的分析将探讨PRIDE应用程序对参与者独立性、情绪和生活质量的影响。访谈数据将讨论参与者的体验、应用程序的使用对他们的影响，以及该应用程序是否有潜力在痴呆症服务中成功实施和维持。
本研究将展示PRIDE应用程序干预在轻度痴呆症患者生活中的潜在覆盖范围、有效性和采用率。本研究结果将为未来关于PRIDE应用程序的研究以及任何进一步改进其有效性的开发提供信息。
国际注册报告识别码（IRRID）：DERR1-10.2196/33881
