Department of Mental Health and Clinical Neurosciences, University of Nottingham School of Medicine, Nottingham, UK.
J Geriatr Psychiatry Neurol. 2024 Nov;37(6):461-472. doi: 10.1177/08919887241246237. Epub 2024 Apr 10.
Self-management is pivotal in helping people with their independence and in managing their health conditions more effectively. The PRIDE-app is a novel online intervention, providing support and information for people living with dementia and their families, aimed at increasing self-management and improving quality of life. Knowledge generated will help inform future developments to the app, with the aim of improving its uptake and implementation in services.
A mixed-methods approach incorporating the RE-AIM framework. Recruited 25 people living with dementia, of which 17completed the PRIDE-app intervention over 8 weeks with support from a dementia adviser facilitator. Measures exploring mood, physical well-being, and quality of life were collected at baseline, 3 and 6 months and analysed through modelled analysis. Post-intervention interviews were conducted with participants and facilitators and analysed through thematic analysis.
Quantitative results did not show significant improvements in participants' scores. Qualitative data showed that the PRIDE-app motivated people to reconnect socially and set individual goals for activities. Participants and facilitators identified areas for improvements to the app interface and delivery format.
This study evaluated the PRIDE-app's reach, effectiveness and adoptability in the independence and quality of life of people living with dementia, as well as how it could be implemented and maintained within services. Pre- and post-intervention scores were inconclusive. Interviews provided positive feedback of the app's influence on peoples' activities and mood.
自我管理对于帮助人们独立并更有效地管理自己的健康状况至关重要。PRIDE-app 是一种新颖的在线干预措施,为痴呆症患者及其家属提供支持和信息,旨在增强自我管理能力并提高生活质量。所产生的知识将有助于为应用程序的未来发展提供信息,目的是提高其在服务中的采用率和实施率。
采用包含 RE-AIM 框架的混合方法。招募了 25 名患有痴呆症的人,其中 17 人在痴呆症顾问促进者的支持下,在 8 周内完成了 PRIDE-app 干预。在基线、3 个月和 6 个月时收集了探索情绪、身体幸福感和生活质量的措施,并通过模型分析进行了分析。对参与者和促进者进行了干预后的访谈,并通过主题分析进行了分析。
定量结果并未显示参与者分数有显著提高。定性数据表明,PRIDE-app 激励人们重新建立社交联系并为活动设定个人目标。参与者和促进者确定了改进应用程序界面和交付格式的领域。
本研究评估了 PRIDE-app 在独立和生活质量方面对痴呆症患者的影响、效果和可接受性,以及如何在服务中实施和维持该应用程序。干预前后的分数没有定论。访谈提供了关于应用程序对人们活动和情绪影响的积极反馈。