Sheffield Children's NHS Foundation Trust, Western Bank, Sheffield, S10 2TH, UK.
Department of Rheumatology, Royal Hallamshire Hospital, Sheffield Teaching Hospitals NHS Foundation Trust, 2 Claremont Place, Sheffield, S10 2TB, UK.
Clin Rheumatol. 2022 Dec;41(12):3777-3782. doi: 10.1007/s10067-022-06237-5. Epub 2022 Jul 28.
The aim of this study is to investigate the relationships between psychological/social factors and transfer readiness from paediatric to adult rheumatology services in pre- and post-transfer young people (YP) with juvenile idiopathic arthritis (JIA). Participants completed questionnaires measuring a broad range of psychological/social factors (generalised anxiety, pain-specific anxiety, pain-related thoughts, depression, prosocial behaviours, problem behaviours, arthritis-related quality of life (QoL), social support, family functioning) and transfer readiness (transfer-related knowledge and skills, health-related self-efficacy). JIA disease activity was measured on the same day as the questionnaires. This study received all relevant ethical and regulatory approvals, and informed consent was received from or on behalf of all participants. In total, 40 pre-transfer YP with JIA aged 10-16 years (M = 13.54 years, 26 females) and their parents/guardians participated at Sheffield Children's NHS Foundation Trust, and 40 post-transfer YP with JIA aged 16-24 years (M = 20.16 years, 26 females) participated at Sheffield Teaching Hospitals NHS Foundation Trust. For both pre- and post-transfer YP, greater transfer readiness was associated with lower generalised anxiety levels, lower pain-specific anxiety levels, fewer pain-related thoughts, lower depression levels, fewer problem behaviours, better arthritis-related QoL, better social support, and better family functioning. Greater transfer readiness was also associated with less JIA disease activity for post-transfer YP only. A broad range of psychological/social factors were associated with transfer readiness in pre- and post-transfer YP with JIA. This highlights the importance of assessing and addressing YP's psychological/social well-being during their transition to adult services. Key Points • A wide range of psychological and social factors may be associated with how ready young people with juvenile idiopathic arthritis feel to move from paediatric to adult rheumatology services. • Transition outcomes may be improved by comprehensively assessing and addressing young people's psychological and social well-being.
本研究旨在探讨心理/社会因素与儿科到成人风湿病服务转介准备之间的关系，研究对象为接受幼年特发性关节炎（JIA）治疗的青少年（YP）在转介前后的心理/社会因素（广泛性焦虑、疼痛特异性焦虑、疼痛相关思维、抑郁、亲社会行为、问题行为、关节炎相关生活质量（QoL）、社会支持、家庭功能）和转介准备情况（转介相关知识和技能、健康相关自我效能）。JIA 疾病活动度与问卷同日测量。本研究获得了所有相关伦理和监管部门的批准，并获得了所有参与者或其代表的知情同意。共有 40 名年龄在 10-16 岁（M=13.54 岁，26 名女性）的接受治疗前的 YP 及其父母/监护人，以及 40 名年龄在 16-24 岁（M=20.16 岁，26 名女性）的接受治疗后的 YP 在谢菲尔德儿童国民保健服务基金会信托基金会参与了研究。对于接受治疗前和接受治疗后的 YP，转介准备度越高，其广泛性焦虑水平越低、疼痛特异性焦虑水平越低、疼痛相关思维越少、抑郁水平越低、问题行为越少、关节炎相关 QoL 越好、社会支持越好、家庭功能越好。只有接受治疗后的 YP，转介准备度越高，JIA 疾病活动度越低。心理/社会因素广泛与接受治疗前和接受治疗后的 JIA YP 的转介准备相关。这强调了在向成人服务过渡期间评估和解决 YP 心理/社会幸福感的重要性。关键点 • 广泛的心理和社会因素可能与青少年特发性关节炎患者对从儿科到成人风湿病服务的转介准备程度有关。• 通过全面评估和解决年轻人的心理和社会幸福感，可能会改善转介结果。
