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EULAR points to consider for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures.欧洲抗风湿病联盟（EULAR）关于将炎性关节炎年轻患者的观点纳入患者报告结局指标的考量要点。
RMD Open. 2022 Jul;8(2). doi: 10.1136/rmdopen-2022-002576.
2
Patient- and clinician-reported outcomes for patients with new presentation of inflammatory arthritis: observations from the National Clinical Audit for Rheumatoid and Early Inflammatory Arthritis.炎症性关节炎新发病患者的患者报告结局和临床医生报告结局：类风湿性关节炎和早期炎症性关节炎国家临床审计的观察结果
Rheumatology (Oxford). 2017 Feb;56(2):231-238. doi: 10.1093/rheumatology/kew309. Epub 2016 Oct 1.
3
Adalimumab, etanercept, infliximab, certolizumab pegol, golimumab, tocilizumab and abatacept for the treatment of rheumatoid arthritis not previously treated with disease-modifying antirheumatic drugs and after the failure of conventional disease-modifying antirheumatic drugs only: systematic review and economic evaluation.阿达木单抗、依那西普、英夫利昔单抗、聚乙二醇化赛妥珠单抗、戈利木单抗、托珠单抗和阿巴西普用于治疗既往未使用改善病情抗风湿药物治疗且仅在传统改善病情抗风湿药物治疗失败后的类风湿关节炎：系统评价和经济学评估。
Health Technol Assess. 2016 Apr;20(35):1-610. doi: 10.3310/hta20350.
4
Brief report: rheumatoid arthritis response criteria and patient-reported improvement in arthritis activity: is an American College of Rheumatology twenty percent response meaningful to patients?简要报告：类风湿关节炎反应标准和患者报告的关节炎活动改善：美国风湿病学会 20%反应对患者有意义吗？
Arthritis Rheumatol. 2014 Sep;66(9):2339-43. doi: 10.1002/art.38705.
5
Development of a national audit tool for juvenile idiopathic arthritis: a BSPAR project funded by the Health Care Quality Improvement Partnership.青少年特发性关节炎国家审计工具的开发：一项由医疗质量改进伙伴关系资助的英国儿科和青少年风湿病学会项目。
Rheumatology (Oxford). 2018 Jan 1;57(1):140-151. doi: 10.1093/rheumatology/kex322.
6
EULAR definition of erosive disease in light of the 2010 ACR/EULAR rheumatoid arthritis classification criteria.基于 2010 年 ACR/EULAR 类风湿关节炎分类标准的 EULAR 侵蚀性疾病定义。
Ann Rheum Dis. 2013 Apr;72(4):479-81. doi: 10.1136/annrheumdis-2012-202779. Epub 2013 Feb 2.
7
Changes in the clinical presentation of patients with rheumatoid arthritis from the early 1990s to the years 2010: earlier identification but more severe patient reported outcomes.从20世纪90年代初到2010年类风湿性关节炎患者临床表现的变化：更早确诊但患者报告的结局更严重。
Ann Rheum Dis. 2016 Nov;75(11):2054-2056. doi: 10.1136/annrheumdis-2016-209949. Epub 2016 Aug 24.
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The new 2010 ACR/EULAR criteria as predictor of clinical and radiographic response in patients with early arthritis.2010年美国风湿病学会/欧洲抗风湿病联盟新标准对早期关节炎患者临床及影像学反应的预测作用
Clin Rheumatol. 2015 Jan;34(1):51-9. doi: 10.1007/s10067-014-2737-5. Epub 2014 Jul 15.
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Patient-reported outcomes with golimumab in patients with rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis: non-interventional study GO-NICE in Germany.戈利木单抗治疗类风湿关节炎、银屑病关节炎和强直性脊柱炎患者的患者报告结局：德国非干预性 GO-NICE 研究。
Rheumatol Int. 2019 Jan;39(1):131-140. doi: 10.1007/s00296-018-4180-4. Epub 2018 Nov 10.
10
Patient perspective on remission in rheumatoid arthritis: Validation of patient reported outcome instruments to measure absence of disease activity.类风湿关节炎缓解的患者视角：用于测量无疾病活动的患者报告结局测量工具的验证。
Semin Arthritis Rheum. 2021 Dec;51(6):1360-1369. doi: 10.1016/j.semarthrit.2021.07.005. Epub 2021 Jul 25.

本文引用的文献

1
Young people's perspectives on patient-reported outcome measures in inflammatory arthritis: results of a multicentre European qualitative study from a EULAR task force.年轻人对炎症性关节炎患者报告结局测量的看法：来自 EULAR 工作组的一项多中心欧洲定性研究的结果。
RMD Open. 2021 Jan;7(1). doi: 10.1136/rmdopen-2020-001517.
2
How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis.患者报告结局测量指标（PROMs）如何支持临床医生与患者之间的沟通及患者护理？一项实在论综合分析。
J Patient Rep Outcomes. 2018 Sep 15;2:42. doi: 10.1186/s41687-018-0061-6. eCollection 2018 Dec.
3
A systematic review of measurement properties of patient reported outcome measures in psoriatic arthritis: A GRAPPA-OMERACT initiative.一项针对银屑病关节炎患者报告结局测量的测量特性的系统评价：GRAPPA-OMERACT 倡议。
Semin Arthritis Rheum. 2018 Apr;47(5):654-665. doi: 10.1016/j.semarthrit.2017.09.002. Epub 2017 Sep 9.
4
A systematic review of quality-of-life domains and items relevant to patients with spondyloarthritis.对与脊柱关节炎患者相关的生活质量领域和项目的系统评价。
Semin Arthritis Rheum. 2017 Oct;47(2):175-182. doi: 10.1016/j.semarthrit.2017.04.002. Epub 2017 Apr 18.
5
Systematic review of patient-reported outcome measures (PROMs) for assessing disease activity in rheumatoid arthritis.系统评价患者报告结局测量（PROMs）在类风湿关节炎疾病活动评估中的应用。
RMD Open. 2016 Aug 18;2(2):e000202. doi: 10.1136/rmdopen-2015-000202. eCollection 2016.
6
Patient-Reported Outcomes in Rheumatoid Arthritis.类风湿关节炎患者报告的结局
Rheum Dis Clin North Am. 2016 May;42(2):219-37. doi: 10.1016/j.rdc.2016.01.010. Epub 2016 Mar 17.
7
Patient-reported outcomes as end points in clinical trials in rheumatoid arthritis.患者报告的结局作为类风湿关节炎临床试验的终点。
RMD Open. 2015 Apr 2;1(1):e000019. doi: 10.1136/rmdopen-2014-000019. eCollection 2015.
8
2014 Update of the EULAR standardised operating procedures for EULAR-endorsed recommendations.欧洲抗风湿病联盟（EULAR）认可推荐意见的EULAR标准化操作程序2014年更新版。
Ann Rheum Dis. 2015 Jan;74(1):8-13. doi: 10.1136/annrheumdis-2014-206350. Epub 2014 Sep 26.

EULAR points to consider for including the perspective of young patients with inflammatory arthritis into patient-reported outcomes measures.

作者信息

Studenic Paul, Stamm Tanja A, Mosor Erika, Bini Ilaria, Caeyers Nele, Gossec Laure, Kouloumas Marios, Nikiphorou Elena, Olsder Wendy, Padjen Ivan, Ramiro Sofia, Stones Simon, Wilhelmer Tanita-Christina, Alunno Alessia

机构信息

Department of Internal Medicine 3, Division of Rheumatology, Medical University of Vienna, Wien, Austria

Department of Medicine (Solna), Division of Rheumatology, Karolinska Institute, Stockholm, Sweden.

出版信息

RMD Open. 2022 Jul;8(2). doi: 10.1136/rmdopen-2022-002576.

DOI:10.1136/rmdopen-2022-002576
PMID:35906026
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9345076/
Abstract
摘要