Center for Qualitative Research in Psychology and Psychosocial Well-being, Department of Psychology, School of Philosophy, National and Kapodistrian University of Athens, Greece.
Department of Psychology, School of Philosophy, National and Kapodistrian University of Athens, Greece.
Epilepsy Behav. 2022 Sep;134:108862. doi: 10.1016/j.yebeh.2022.108862. Epub 2022 Jul 29.
Childhood-onset epilepsy alters the everyday life of parents who have children or adolescents with epilepsy (CAWE). The aim of this qualitative study was to explore the experiences of Greek parents with CAWE, including perceived positive outcomes in their lives, where research in this area is limited. Fifteen parents took part in semi-structured interviews which were conducted online due to the social distancing measures imposed by the COVID-19 pandemic. Main results showed that parents with CAWE experience stress, somatic symptoms, mood swings, fear along with feelings of anger, and a sense of injustice. Positive outcomes were identified at a personal level, in parenting skills, and in achieving family cohesion. Parents reported that they had achieved increased personal strength, new perspectives, better life appreciation, and changes in their spiritual beliefs. Moreover, they mentioned the acquisition of new parenting skills which helped them become better caregivers as well as feeling more united with other family members. The changes that parents identified are discussed in relation to aspects of the Post-Traumatic Growth construct, and future recommendations and implications for practice are proposed.
儿童期起病的癫痫改变了有癫痫儿童或青少年的父母（CAWE）的日常生活。这项定性研究的目的是探讨希腊 CAWE 父母的经历，包括他们生活中感知到的积极结果，而这方面的研究有限。由于 COVID-19 大流行实施的社交距离措施，15 名父母参加了在线进行的半结构化访谈。主要结果表明，CAWE 的父母会经历压力、躯体症状、情绪波动、恐惧以及愤怒和不公平感。在个人层面、育儿技能和家庭凝聚力方面都发现了积极的结果。父母报告说，他们获得了个人力量的增强、新的视角、对生活的更好欣赏以及对精神信仰的改变。此外，他们提到了获得新的育儿技能，这有助于他们成为更好的照顾者，并感到与其他家庭成员更加团结。讨论了父母所确定的变化与创伤后成长结构的各个方面的关系，并提出了未来的建议和实践意义。
