Oslo Metropolitan University, St. Olavs plass, P.O. Box 4, NO-0130, Oslo, Norway.
Department of Digital Health Research, Division of Medicine, Oslo University Hospital, Oslo, Norway.
BMC Musculoskelet Disord. 2022 Aug 2;23(1):738. doi: 10.1186/s12891-022-05678-y.
Patient participation is highlighted as an important facilitator for patient-centered care. Patient participation organised as patient advisory boards (PABs) is an integral part of health care institutions in Norway. More knowledge is needed on how PAB representatives experience patient engagement (PE) with regard to organisation, influence, and impact. The objective was to describe how PAB representatives experience their tasks, roles, and impact on decision-making processes and service delivery in the setting of rehabilitation institutions.
PAB representatives recruited from rehabilitation institutions completed the Norwegian version of the generic Public and Patient Engagement evaluation tool (Norwegian abbreviation EBNOR). EBNOR is tested for reliability and validity with good results and comprises 35 items within four main domains, policies and practices, participatory culture, collaboration, and influence and impact that provide responses about PE-levels. The domain items are scored from "strongly disagree" to "strongly agree" on a five-point scale, in addition to a don't know category. Items in the domain "influence and impact" are scored from "never" to "all of the time" on a four-point scale. Categorical data were summarized using frequencies and percentages, and response categories were collapsed into three PE-levels: barrier, intermediate, and facilitating level. Free-text responses were analysed according to principles of manifest content analysis, summed up, and used to elaborate the results of the scores.
Of the 150 contacted PAB representatives, 47 (32%) consented to participate. The results showed that approximately 75% agreed that the organisation as a whole was strengthened as a result of patient participation. Four out of five domains were scored indicating a facilitating level; policies and practices (53%), participatory culture (53%), collaboration and common purpose (37%), and final thoughts (63%). The modal score in the domain influence and impact was in the intermediate PE-level (44%). Of a total of 34 codes from free text analyses, barriers to PE were coded 26 times, and PE facilitators were coded 8 times.
The findings indicate that most PAB representatives are satisfied with how rehabilitation institutions organise their PAB, but they still experience their impact as limited.
患者参与被强调为以患者为中心的护理的重要促进因素。以患者咨询委员会 (PAB) 的形式组织的患者参与是挪威医疗机构不可或缺的一部分。我们需要更多了解 PAB 代表在组织、影响和影响方面体验患者参与的情况。目的是描述 PAB 代表在康复机构的背景下，如何体验他们的任务、角色以及对决策过程和服务提供的影响。
从康复机构招募的 PAB 代表填写了挪威版通用公众和患者参与评估工具 (简称 EBNOR)。EBNOR 的可靠性和有效性经过了测试，结果良好，包括四个主要领域的 35 个项目，即政策和实践、参与文化、合作以及影响和影响，这些项目提供了关于参与水平的信息。在五分制上，从“强烈不同意”到“强烈同意”对领域项目进行评分，另外还有“不知道”选项。“影响和影响”领域的项目在四分制上从“从不”到“一直”进行评分。使用频率和百分比对分类数据进行总结，并将响应类别合并为三个参与水平：障碍、中间和促进水平。根据显式内容分析的原则对自由文本回复进行分析、总结，并用于阐述分数的结果。
在联系的 150 名 PAB 代表中，有 47 名（32%）同意参与。结果表明，大约 75%的代表同意患者参与使整个组织得到加强。五个领域中有四个领域的评分表明处于促进水平；政策和实践（53%）、参与文化（53%）、合作和共同目标（37%）以及最终想法（63%）。“影响和影响”领域的模态得分处于中间参与水平（44%）。在对自由文本分析的 34 个代码中，共有 26 次记录了参与障碍，8 次记录了参与促进因素。
研究结果表明，大多数 PAB 代表对康复机构组织 PAB 的方式感到满意，但他们仍然认为自己的影响有限。
