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本文引用的文献

1
Indigenous and Tribal Peoples Data Governance in Health Research: A Systematic Review.原住民和部落民族在健康研究中的数据治理：系统评价。
Int J Environ Res Public Health. 2021 Sep 30;18(19):10318. doi: 10.3390/ijerph181910318.
2
Creating Synergies between Citizen Science and Indigenous and Local Knowledge.在公民科学与本土及地方知识之间创造协同效应。
Bioscience. 2021 Apr 28;71(5):503-518. doi: 10.1093/biosci/biab023. eCollection 2021 May.
3
The Concept, Practice, Application, and Results of Locally Based Monitoring of the Environment.基于本地的环境监测的概念、实践、应用及结果
Bioscience. 2021 Apr 28;71(5):484-502. doi: 10.1093/biosci/biab021. eCollection 2021 May.
4
Connecting Top-Down and Bottom-Up Approaches in Environmental Observing.在环境观测中连接自上而下和自下而上的方法。
Bioscience. 2021 Apr 28;71(5):467-483. doi: 10.1093/biosci/biab018. eCollection 2021 May.
5
The Use of Digital Platforms for Community-Based Monitoring.基于社区的监测中数字平台的应用。
Bioscience. 2021 Apr 28;71(5):452-466. doi: 10.1093/biosci/biaa162. eCollection 2021 May.
6
Operationalizing the CARE and FAIR Principles for Indigenous data futures.为原住民数据的未来实施 CARE 和 FAIR 原则。
Sci Data. 2021 Apr 16;8(1):108. doi: 10.1038/s41597-021-00892-0.
7
Australian Aboriginal and Torres Strait Islander Collections of Genetic Heritage: The Legal, Ethical and Practical Considerations of a Dynamic Consent Approach to Decision Making.澳大利亚原住民和托雷斯海峡岛民的遗传遗产收集：动态同意决策方法的法律、伦理和实际考量
J Law Med Ethics. 2020 Mar;48(1):205-217. doi: 10.1177/1073110520917012.
8
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data.权利、利益和期望：关于无限制获取基因组数据的原住民观点。
Nat Rev Genet. 2020 Jun;21(6):377-384. doi: 10.1038/s41576-020-0228-x. Epub 2020 Apr 6.
9
Genomic Research Through an Indigenous Lens: Understanding the Expectations.从原住民视角进行基因组研究：理解其期望。
Annu Rev Genomics Hum Genet. 2019 Aug 31;20:495-517. doi: 10.1146/annurev-genom-083118-015434. Epub 2019 Mar 20.
10
Conducting research with tribal communities: sovereignty, ethics, and data-sharing issues.与部落社区合作开展研究：主权、伦理和数据共享问题。
Environ Health Perspect. 2012 Jan;120(1):6-10. doi: 10.1289/ehp.1103904. Epub 2011 Sep 2.

Data Sovereignty in Community-Based Environmental Monitoring: Toward Equitable Environmental Data Governance.

作者信息

Reyes-García Victoria, Tofighi-Niaki Adrien, Austin Beau J, Benyei Petra, Danielsen Finn, Fernández-Llamazares Álvaro, Sharma Aditi, Soleymani-Fard Ramin, Tengö Maria

机构信息

Universitat Autònoma de Barcelona, Barcelona, Spain.

Charles Darwin University, Darwin, Northern Territory, Australia.

出版信息

Bioscience. 2022 Jun 20;72(8):714-717. doi: 10.1093/biosci/biac048. eCollection 2022 Aug.

DOI:10.1093/biosci/biac048
PMID:35923191
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9343228/
Abstract
摘要