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《画面中》:癌症患者的生活与工作感悟

'In the picture': perspectives on living and working with cancer.

机构信息

Anthropology, Goldsmiths University of London, London, UK

Infectious Disease Epidemiology, Imperial College London School of Public Health, London, UK.

出版信息

Med Humanit. 2023 Mar;49(1):83-92. doi: 10.1136/medhum-2022-012392. Epub 2022 Aug 4.

Abstract

We explored working and living with cancer at a large research-intensive National Health Service hospital breast cancer service and adjoining non-governmental organisation (NGO). The project had three elements that were largely autonomous in practice but conceptually integrated through a focus on personalised cancer medicine. Di Sherlock held conversations with staff and patients from which she produced a collection of poems, At the same time, we conducted interviews and observation in the hospital, and hosted a public series of science cafés in the NGO. The trajectory of this project was not predetermined, but we found that the poetry residency provided a context for viewing participation in experimental cancer care and vice versa. Taking themes from the poetry practice, we show how they revealed categories of relevance to participants and illuminated others that circulated in the hospital and NGO. Reciprocally, turning to findings from long-term ethnographic research with patients, we show that their observations were not only representations but also tools for navigating life in waiting with cancer. The categories that we discovered and assembled about living and working with cancer do not readily combine into an encompassing picture, we argue, but instead provide alternating perspectives. Through analysis of different forms of research participation, we hope to contribute to an understanding of how categories are made, recognised and inhabited through situated comparisons. In personalised medicine, category-making is enabled if not dependent on increasingly intensive computation and so the practices seem far removed from mundane processes of interaction. Yet, we emphasise connections with everyday practices, in which people categorise themselves and others routinely according to what they like and resemble.

摘要

我们在一家大型研究型国民保健服务医院的乳腺癌服务处和毗邻的非政府组织(非政府组织)探索了与癌症一起工作和生活。该项目有三个要素,在实践中基本是自主的,但通过关注个性化癌症医学在概念上是整合的。Di Sherlock 与员工和患者进行了交谈,从中创作了一系列诗歌。与此同时,我们在医院进行了访谈和观察,并在非政府组织举办了一系列公开的科学咖啡馆。该项目的轨迹并非预先确定,但我们发现诗歌驻地为观察实验性癌症护理的参与以及反之亦然提供了一个背景。从诗歌实践中选取主题,我们展示了它们如何揭示与参与者相关的类别,并阐明了在医院和非政府组织中流传的其他类别。反过来,我们转向与患者进行长期民族志研究的发现,表明他们的观察不仅是代表性的,而且是在等待癌症时驾驭生活的工具。我们发现并组合的关于与癌症一起生活和工作的类别不容易组合成一个全面的画面,我们认为,而是提供了交替的视角。通过对不同形式的研究参与的分析,我们希望有助于理解类别是如何通过情境比较来形成、识别和居住的。在个性化医学中,如果不是依赖于越来越密集的计算,那么类别制作就成为可能,因此这些实践似乎与日常的互动过程相去甚远。然而,我们强调与日常实践的联系,人们根据自己的喜好和相似之处,常规地对自己和他人进行分类。

相似文献

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'In the picture': perspectives on living and working with cancer.《画面中》:癌症患者的生活与工作感悟
Med Humanit. 2023 Mar;49(1):83-92. doi: 10.1136/medhum-2022-012392. Epub 2022 Aug 4.

本文引用的文献

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Sociol Health Illn. 2022 Mar;44(3):624-640. doi: 10.1111/1467-9566.13441. Epub 2022 Feb 10.
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Beyond the binaries: reshaping pain communication through arts workshops.超越二元对立:通过艺术工作坊重塑疼痛交流
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