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一项英国在线调查,旨在探讨 SARS-CoV-2 大流行期间,患者对远程咨询管理银屑病和银屑病关节炎的看法。

A UK online survey exploring patient perspectives of remote consultations for managing psoriasis and psoriatic arthritis during the SARS-CoV-2 pandemic.

机构信息

School of Healthcare Sciences, College of Biomedical & Lifesciences, Cardiff University, Cardiff, UK.

The Psoriasis Association, Northampton, England, UKb.

出版信息

Psychol Health Med. 2023 Dec;28(10):3163-3176. doi: 10.1080/13548506.2022.2104883. Epub 2022 Aug 8.

Abstract

The use of remote consultations via telephone or video can contribute to the management of people with psoriasis and has allowed continuity of patient care throughout the SARS-CoV-2 pandemic, though little is known about the patient experience. The present study aimed to provide insights into the views and experiences of people with psoriasis and psoriatic arthritis on their remote consultations during the SARS-CoV-2 pandemic and develop guidance for patients and healthcare professionals on how to optimise future remote consultations. We conducted a cross-sectional, on-line survey of people with psoriasis and psoriatic arthritis. Data were analysed using descriptive statistics and Thematic Analysis. Overall, 126 people reported experiences of telephone (92%) or video (8%) consultations. Most participants were satisfied with (78%), and were happy for, remote consultations to continue (21%); few were not (5%). Others did not always want remote consultations (39%) and preferred alternating with face-to-face consultations (18%). Some wanted remote care during the pandemic only (17%). Five themes were identified: (1) ; (2) plus sub-themes (2.1) and (2.2) ; (3) ; and (4) ; and (5) . Remote consultations form an important part of psoriatic disease management, mainly for routine follow-up appointments in patients with stable disease, and in addition to face-to-face consultations. Additional skills training for clinicians could improve the quality of remote consultations.

摘要

远程咨询(如电话或视频咨询)可用于管理银屑病患者,并且在 SARS-CoV-2 大流行期间允许患者的护理持续进行,尽管对于患者的体验知之甚少。本研究旨在深入了解银屑病和银屑病关节炎患者在 SARS-CoV-2 大流行期间远程咨询的看法和体验,并为患者和医疗保健专业人员提供有关如何优化未来远程咨询的指导。我们对银屑病和银屑病关节炎患者进行了横断面在线调查。使用描述性统计和主题分析对数据进行了分析。总体而言,有 126 人报告了电话(92%)或视频(8%)咨询的经历。大多数参与者对远程咨询感到满意(78%),并希望继续进行(21%);少数人不满意(5%)。其他人并不总是希望进行远程咨询(39%),并更喜欢交替进行面对面咨询(18%)。有些人仅希望在大流行期间进行远程护理(17%)。确定了五个主题:(1);(2)加上子主题(2.1)和(2.2);(3);(4);和(5)。远程咨询是银屑病疾病管理的重要组成部分,主要用于病情稳定的患者的常规随访预约,并且可以替代面对面咨询。对临床医生进行额外的技能培训可以提高远程咨询的质量。

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