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比利时基于人群队列研究的机遇。

Opportunities for a population-based cohort in Belgium.

作者信息

Schutte Nienke, Saelaert Marlies, Bogaert Petronille, De Ridder Karin, Van Oyen Herman, Van der Heyden Johan, Devleesschauwer Brecht

机构信息

Lifestyle and chronic diseases, Department of Epidemiology and Public Health, Sciensano, Rue J Wytsman 14, 1050, Brussels, Belgium.

Department of Public Health and Primary Care, Ghent University, Ghent, Belgium.

出版信息

Arch Public Health. 2022 Aug 11;80(1):188. doi: 10.1186/s13690-022-00949-5.

DOI:10.1186/s13690-022-00949-5
PMID:35953875
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9366127/
Abstract

Population-based cohorts allow providing answers to a wide range of policy-relevant research questions. In Belgium, existing cohort-like initiatives are limited by their focus on specific population groups or specific topics, or they lack a true longitudinal design. Since 2016, consultations and deliberative processes have been set up to explore the opportunities for a population-based cohort in Belgium. Through these processes, several recommendations emerged to pave the way forward - i.e., to facilitate the establishment of administrative linkages, increase digitalisation, secure long-term financial and organisational efforts, establish a consortium of the willing, and identify and tackle ethical and legal bottlenecks. This comment summarizes these recommendations, as these opportunities should be explored in depth to consolidate the existing collaborations between different stakeholders, and refers to current initiatives that can further facilitate the establishment of a Belgian population-based cohort and, more generally, administrative and health data linkage and reuse for research and policy-making.

摘要

基于人群的队列研究能够回答一系列与政策相关的研究问题。在比利时,现有的类似队列研究的举措受到限制,要么专注于特定人群组或特定主题,要么缺乏真正的纵向设计。自2016年以来,已开展了磋商和审议程序,以探索在比利时开展基于人群的队列研究的机会。通过这些程序,提出了若干建议以推动前进——即促进建立行政联系、提高数字化程度、确保长期的资金和组织投入、建立自愿者联盟,以及识别和解决伦理和法律瓶颈。本评论总结了这些建议,因为应深入探索这些机会,以巩固不同利益相关者之间现有的合作,并提及当前的举措,这些举措可以进一步促进比利时基于人群的队列研究的建立,更广泛地说,促进行政和健康数据的链接以及用于研究和政策制定的再利用。

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