Department of Epidemiology, Biostatistics, and Occupational Health, Faculty of Medicine, McGill University, Montreal, Canada.
Department of Family Medicine, Faculty of Medicine and Health Sciences, Faculty of Medicine, McGill University, Montréal, Canada.
J Alzheimers Dis. 2022;89(3):1091-1101. doi: 10.3233/JAD-220327.
The first imperative in producing the relevant and needed knowledge about major neurocognitive disorder (MNCD) is to identify people presenting with the condition adequately. To document potential disparities between administrative health databases and population-based surveys could help identify specific challenges in this population and methodological shortfalls.
To describe and compare the characteristics of community-dwelling older adults according to four groups: 1) No MNCD; 2) Self-reported MNCD only; 3) MNCD in administrative health data only; 4) MNCD in both self-reported and administrative health data.
This retrospective cohort study used the Care Trajectories-Enriched Data (TorSaDE) cohort, a linkage between five waves of the Canadian Community Health Survey (CCHS) and health administrative health data. We included older adults living in the community who participated in at least one cycle of the CCHS. We reported on positive and negative MNCD in self-reported versus administrative health data. We then compared groups' characteristics using chi-square tests and ANOVA.
The study cohort was composed of 25,125 older adults, of which 784 (3.1%) had MNCD. About 70% of people with an MNCD identified in administrative health data did not report it in the CCHS. The four groups present specific challenges related to the importance of perception, timely diagnosis, and the caregivers' roles in reporting health information.
To a certain degree, both data sources fail to consider subgroups experiencing issues related to MNCD; studies like ours provide insight to understand their characteristics and needs better.
产生关于主要神经认知障碍（MNCD）的相关和必要知识的首要任务是充分识别出现这种疾病的人群。记录行政健康数据库和基于人群的调查之间潜在的差异，可以帮助识别该人群中的具体挑战和方法上的不足。
根据以下四个组别描述和比较社区居住的老年人的特征：1）无 MNCD；2）仅自我报告 MNCD；3）仅在行政健康数据中存在 MNCD；4）在自我报告和行政健康数据中均存在 MNCD。
本回顾性队列研究使用了护理轨迹丰富数据（TorSaDE）队列，这是加拿大社区健康调查（CCHS）的五个波次与健康行政健康数据的链接。我们纳入了居住在社区中至少参加过一次 CCHS 周期的老年人。我们报告了自我报告和行政健康数据中 MNCD 的阳性和阴性情况。然后，我们使用卡方检验和方差分析比较了各组的特征。
研究队列由 25125 名老年人组成，其中 784 人（3.1%）患有 MNCD。大约 70%在行政健康数据中识别出的 MNCD 患者在 CCHS 中并未报告。四个组别均存在与认知、及时诊断和护理人员在报告健康信息方面的角色相关的特定挑战。
在某种程度上，这两种数据源都未能考虑到与 MNCD 相关的问题亚组；像我们这样的研究提供了深入了解其特征和需求的见解。
