Mauri Davide, Kampletsas Eleftherios, Smyris George, Tsali Lampriani, Tsekeris Periklis, Harissis Haralampos, Kamposioras Konstantinos, Tolia Maria, Hyphantis Thomas, Ntellas Panagiotis, Gazouli Ioanna, Zarkavelis Georgios, Mavroeidis Leonidas, Amylidi Anna-Lea, Torounidou Nanteznta, Gogadis Aristeidis, Nixon Joanna
Department of Medical Oncology, Psychiatry, Radiotherapy, and Surgery, University Hospital of Ioannina, Ioannina, Greece.
Department of Architectural Engineering, Architecture Faculty, University of Ioannina, Ioannina, Greece.
Palliat Med Rep. 2021 Dec 27;2(1):365-368. doi: 10.1089/pmr.2021.0031. eCollection 2021.
Upon the onset of a debilitating rapidly evolving condition (such as cancer or a rapidly progressing myopathy, neuropathy, respiratory disease, or a severe traumatic injury), individuals have limited time to find a new home or make radical structural modifications in their residence. How the affected patients can continue sharing the same house with their families, while meeting their own special requirements, is thus rising as a critical issue. Household and daily routine rearrangements, either temporary or permanent, may be necessary, to ameliorate the life of patients with impairments, lasting for months or even years.
Interior design may provide a highly efficient "living" palliation for debilitating medical conditions directly at patients' home-site.
Research of relevant literature, using keywords "debilitating conditions," "home care," "end of life care," "care of advanced cancer patients," "care of patients with mental disorders," "home care of covid-19 affected patients," and "care of patients with degenerative illnesses."
We found that patients and their relatives may not be aware of the probable interior design solutions to their daily life challenges, imposed by a disease-related impairment. In parallel, interior design experts may equally be unaware of these issues, as well as of who needs the available solutions.Similarly, medical and architectural sciences are not connected, eventually failing to meet patients' everyday needs.
Interior architecture and health scientists are called to cooperate, aiming to provide a highly efficient and meaningful support to patients and families affected by unforeseen debilitating medical conditions.
当出现使人衰弱的快速发展的病症（如癌症、快速进展的肌病、神经病、呼吸系统疾病或严重创伤）时，个人找到新住所或对其居住场所进行彻底结构改造的时间有限。因此，受影响的患者如何在满足自身特殊需求的同时继续与家人同住，正成为一个关键问题。可能需要进行临时或永久性的家庭和日常生活安排，以改善有损伤的患者长达数月甚至数年的生活。
室内设计可以直接在患者家中为使人衰弱的病症提供高效的“生活”姑息治疗。
使用关键词“使人衰弱的病症”“家庭护理”“临终护理”“晚期癌症患者护理”“精神障碍患者护理”“新冠病毒感染患者的家庭护理”和“退行性疾病患者护理”对相关文献进行研究。
我们发现，患者及其亲属可能没有意识到针对与疾病相关的损伤给他们日常生活带来的挑战可能的室内设计解决方案。与此同时，室内设计专家可能同样不了解这些问题，以及谁需要现有的解决方案。同样，医学和建筑科学没有联系，最终无法满足患者的日常需求。
室内建筑学和健康科学家被呼吁进行合作，旨在为受意外使人衰弱的病症影响的患者和家庭提供高效且有意义的支持。
