Ewers Michael, Lehmann Yvonne
Institute of Health and Nursing Science, Charité-Universitätsmedizin Berlin, Corporate member of Freie Universität Berlin, Humboldt Universtität zu Berlin, 13353 Berlin, Germany.
Healthcare (Basel). 2022 Aug 4;10(8):1466. doi: 10.3390/healthcare10081466.
(1) The supply of medical technical aids and the instructions on using them is critical for home-mechanically ventilated patients and their relatives. However, limited evidence exists on the needs-based nature of this care. (2) Aim: To gain insights into users' views on this form of care, to identify key challenges, and to derive empirically sound preliminary recommendations for its future design. (3) Methods: An explorative qualitative interview study was performed in Germany. Semi-structured interviews were conducted with home-mechanically ventilated patients and their relatives. Patients were selected through purposive sampling. Interviews were audio-recorded, transcribed, and analysed using a content analysis approach. (3) Results: 27 patients and 9 relatives were interviewed. From their point of view, ventilation-specific equipment is generally reliable and is seen as a belonging of the patient. However, if the patient lacks competence in using the technology or if information or instructions are neglected, ambiguous and unsafe situations easily arise. (4) Conclusions: The present study is one of the first to provide insights into technical aid supply in home-mechanical ventilation from the users' point of view. It highlights the need for continuous professional support and for evidence-based educational strategies that promote safety among the users of technical aids in home care.
(1) 医疗技术辅助设备的供应及其使用说明对居家机械通气患者及其亲属至关重要。然而，关于这种护理基于需求的性质，现有证据有限。(2) 目的：深入了解用户对这种护理形式的看法，确定关键挑战，并得出基于实证的未来设计初步建议。(3) 方法：在德国进行了一项探索性定性访谈研究。对居家机械通气患者及其亲属进行了半结构化访谈。通过目的抽样选择患者。访谈进行了录音、转录，并采用内容分析方法进行分析。(3) 结果：共访谈了27名患者和9名亲属。从他们的角度来看，特定于通气的设备总体上是可靠的，并被视为患者的所属物品。然而，如果患者缺乏使用该技术的能力，或者信息或说明被忽视，很容易出现模糊和不安全的情况。(4) 结论：本研究是首批从用户角度深入了解居家机械通气中技术辅助设备供应情况的研究之一。它强调了持续专业支持以及基于证据的教育策略的必要性，这些策略可促进居家护理中技术辅助设备用户的安全。
