Supporting the Transition to Adulthood for Youth With Spina Bifida: A Call for Neuropsychology-Informed Interventions.
作者信息
Bradstreet Lauren E, Ludwig Natasha, Koterba Christine, Zabel T Andrew, Wilson Camille S
机构信息
Department of Neuropsychology, Kennedy Krieger Institute, Baltimore, Maryland.
Department of Psychiatry and Behavioral Sciences, Johns Hopkins University School of Medicine, Baltimore, Maryland.
出版信息
Top Spinal Cord Inj Rehabil. 2022 Summer;28(3):59-62. doi: 10.46292/sci21-00096. Epub 2022 Aug 17.
Abstract
摘要
相似文献
1
Supporting the Transition to Adulthood for Youth With Spina Bifida: A Call for Neuropsychology-Informed Interventions.支持脊柱裂青年向成年期过渡：呼吁基于神经心理学的干预措施。
Top Spinal Cord Inj Rehabil. 2022 Summer;28(3):59-62. doi: 10.46292/sci21-00096. Epub 2022 Aug 17.
2
Spina bifida transition to adult healthcare guidelines.脊柱裂向成人医疗保健指南的过渡。
J Pediatr Rehabil Med. 2019;12(4):423-429. doi: 10.3233/PRM-190633.
3
Transition Readiness Assessment Questionnaire Spina Bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida.脊柱裂过渡准备评估问卷（TRAQ-SB）特定模块及其与脊柱裂青少年和青年临床结局的关联。
J Pediatr Rehabil Med. 2019;12(4):405-413. doi: 10.3233/PRM-180595.
4
Care for Adults with Spina Bifida: Current State and Future Directions.脊柱裂成人护理：现状与未来方向。
Top Spinal Cord Inj Rehabil. 2017 Spring;23(2):155-167. doi: 10.1310/sci2302-155.
5
Transition to adult care for patients with spina bifida.脊柱裂患者向成人护理的过渡。
Phys Med Rehabil Clin N Am. 2015 Feb;26(1):29-38. doi: 10.1016/j.pmr.2014.09.007.
6
Youth and parents' experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model.与未参与该模式的青少年相比，患有脊柱裂的青少年及其父母对一种新的跨机构过渡模式的体验。
Disabil Health J. 2016 Oct;9(4):705-12. doi: 10.1016/j.dhjo.2016.05.009. Epub 2016 May 27.
7
Ambulatory Care Use among Patients with Spina Bifida: Change in Care from Childhood to Adulthood.脊髓裂患者的门诊护理使用情况：从儿童期到成年期护理的变化。
J Urol. 2018 Apr;199(4):1050-1055. doi: 10.1016/j.juro.2017.10.040. Epub 2017 Nov 4.
8
Developing a Transition Care Coordination Program for Youth With Spina Bifida.为患有脊柱裂的青少年制定过渡性护理协调计划。
J Pediatr Health Care. 2017 Nov-Dec;31(6):627-633. doi: 10.1016/j.pedhc.2017.04.015. Epub 2017 Jul 29.
9
Immigration and transition: Changing demographics forecast the emerging trends in spina bifida care.移民与转变：不断变化的人口结构预示着脊柱裂护理的新趋势。
J Pediatr Rehabil Med. 2019;12(4):337-338. doi: 10.3233/PRM-190016.
10
Implementation of an inter-agency transition model for youth with spina bifida.为患有脊柱裂的青少年实施机构间过渡模式。
Child Care Health Dev. 2016 Mar;42(2):203-12. doi: 10.1111/cch.12303. Epub 2015 Nov 17.
引用本文的文献
1
Evaluating Access to Neuropsychological Services for Individuals with Spina Bifida: Insights from the 2022 Provider Survey.评估脊柱裂患者获得神经心理学服务的情况：来自2022年提供者调查的见解
Top Spinal Cord Inj Rehabil. 2025 Spring;31(2):104-113. doi: 10.46292/sci24-00023. Epub 2025 Jun 19.
2
Psychosocial needs and outcomes of adults with spina bifida: A scoping review, 1974-2023.脊柱裂成人的心理社会需求与结局：一项1974年至2023年的范围综述
Health Care Transit. 2024 Feb 14;2:100041. doi: 10.1016/j.hctj.2024.100041. eCollection 2024.
本文引用的文献
1
Primary care providers need education and resources to provide optimal care for children and adults with spina bifida.初级保健提供者需要接受教育和资源，为患有脊髓裂的儿童和成人提供最佳护理。
J Pediatr Rehabil Med. 2021;14(4):681-689. doi: 10.3233/PRM-210039.
2
Professional practices, beliefs, and incomes of U.S. neuropsychologists: The AACN, NAN, SCN 2020 practice and "salary survey".美国神经心理学家的专业实践、信念和收入：AACN、NAN、SCN 2020 年实践和“薪资调查”。
Clin Neuropsychol. 2021 Jan;35(1):7-80. doi: 10.1080/13854046.2020.1849803. Epub 2020 Dec 29.
3
A Teleneuropsychology Consultation Service Model for Children with Neurodevelopmental and Acquired Disorders Residing in Rural State Regions.农村州地区神经发育和获得性障碍儿童的远程神经心理学咨询服务模式。
Arch Clin Neuropsychol. 2020 Nov 19;35(8):1196-1203. doi: 10.1093/arclin/acaa099.
4
Transdiagnostic feasibility trial of internet-based parenting intervention to reduce child behavioural difficulties associated with congenital and neonatal neurodevelopmental risk: introducing I-InTERACT-North.基于互联网的养育干预减少与先天性和新生儿神经发育风险相关的儿童行为困难的跨诊断可行性试验：介绍 I-InTERACT-North。
Clin Neuropsychol. 2021 Jul;35(5):1030-1052. doi: 10.1080/13854046.2020.1829071. Epub 2020 Oct 8.
5
Pre-appointment online assessment of patient complexity: Towards a personalized model of neuropsychological assessment.预约前在线评估患者的复杂性：迈向神经心理评估的个性化模型。
Child Neuropsychol. 2021 Feb;27(2):232-250. doi: 10.1080/09297049.2020.1822310. Epub 2020 Sep 24.
6
Online Family Problem-Solving Therapy (F-PST) for Executive and Behavioral Dysfunction After Traumatic Brain Injury in Adolescents: A Randomized, Multicenter, Comparative Effectiveness Clinical Trial.青少年创伤性脑损伤后执行和行为功能障碍的在线家庭问题解决治疗（F-PST）：一项随机、多中心、比较有效性临床试验。
J Head Trauma Rehabil. 2020 May/Jun;35(3):165-174. doi: 10.1097/HTR.0000000000000545.
7
Growing up with spina bifida: bridging the gaps in the transition of care from childhood to adulthood.在脊柱裂中成长：弥合从儿童期到成年期护理过渡中的差距。
Neurosurg Focus. 2019 Oct 1;47(4):E16. doi: 10.3171/2019.7.FOCUS19441.
8
Profiles of Neuropsychological Functioning in Children and Adolescents with Spina Bifida: Associations with Biopsychosocial Predictors and Functional Outcomes.脊柱裂儿童和青少年的神经心理功能概况：与生物心理社会预测因素及功能结局的关联
J Int Neuropsychol Soc. 2016 Sep;22(8):804-15. doi: 10.1017/S1355617716000680. Epub 2016 Aug 30.
9
Adolescent predictors of emerging adulthood milestones in youth with spina bifida.青少年脊柱裂患者成年早期里程碑的预测因素。
J Pediatr Psychol. 2011 Apr;36(3):265-76. doi: 10.1093/jpepsy/jsq075. Epub 2010 Sep 19.
10
Psychosocial and family functioning in spina bifida.脊柱裂患者的心理社会及家庭功能
Dev Disabil Res Rev. 2010;16(1):40-6. doi: 10.1002/ddrr.90.
Zotero 插件