Fremion Ellen J, Dosa Nienke P
Transition Medicine Clinic, Baylor College of Medicine, Houston, TX, USA.
Spina Bifida Transition Clinic, Texas Children's Hospital, Houston, TX, USA.
J Pediatr Rehabil Med. 2019;12(4):423-429. doi: 10.3233/PRM-190633.
With an estimated 85% of individuals with spina bifida (SB) surviving into adulthood, SB-specific transition to adult healthcare guidelines are warranted to address the diverse and complex medical, adaptive, and social needs particular to this condition. This commentary discusses the SB Transition Healthcare Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, reviews current transition care models in which such guidelines can be implemented, and explores further research topics in SB transition care.
据估计，85% 的脊柱裂患者能够活到成年，因此有必要制定针对脊柱裂患者向成人医疗保健过渡的指南，以满足这一疾病所特有的多样且复杂的医疗、适应性和社会需求。本评论讨论了2018年脊柱裂协会《脊柱裂患者护理指南》第四版中的脊柱裂过渡医疗保健指南，回顾了可实施此类指南的当前过渡护理模式，并探讨了脊柱裂过渡护理方面的进一步研究课题。
