Medical Assistance in Dying Program, Hamilton Health Sciences, Hamilton, ON, Canada.
Program for Ethics and Ecologies of Care (PEaCE), McMaster University Medical Center, 1F9-1200 Main Street West, L8N 3Z5, Hamilton, ON, Canada.
HEC Forum. 2022 Dec;34(4):429-455. doi: 10.1007/s10730-022-09486-8. Epub 2022 Aug 26.
Following an initial study of the needs of healthcare providers (HCP) regarding the introduction of Medical Assistance in Dying (MAiD), and the subsequent development of an assisted dying program, this study sought to determine the efficacy and impact of MAiD services following the first two years of implementation. The first of three aims of this research was to understand if the needs, concerns and hopes of stakeholders related to patient requests for MAiD were addressed appropriately. Assessing how HCPs and families perceived the quality of MAiD services, and determining if the program successfully accommodated the diverse needs and perspectives of HCPs, rounded out this quality evaluation. This research implemented a mixed-methods design incorporative of an online survey with Likert scale and open-ended questions, as well as focus groups and interviews with staff and physicians, and interviews with MAiD-involved family members. There were 356 online surveys, as well as 39 participants in six focus groups with HCP, as well as fourteen interviews with MAiD-involved family members. Participants indicated that high-quality MAiD care could only be provided with enabling resources such as policies and guidelines to ensure safe, evidence-based, standardized care, as well as a specialized, trained MAiD team. Both focus group and survey data from HCPs suggest the infrastructure developed by the hospital was effective in delivering high-quality MAiD care that supports the diverse needs of various stakeholders. This study may serve as a model for evaluating the impact and quality of services when novel and ethically-contentious clinical practices are introduced to healthcare organizations.
在初步研究医疗保健提供者(HCP)在引入医疗辅助死亡(MAiD)方面的需求以及随后制定辅助死亡计划之后,本研究旨在确定实施后的头两年 MAiD 服务的效果和影响。这项研究的三个目标中的第一个是了解与患者对 MAiD 请求相关的利益相关者的需求、关注点和希望是否得到了适当解决。评估 HCP 和家庭如何看待 MAiD 服务的质量,并确定该计划是否成功满足了 HCP 的多样化需求和观点,这是对服务质量的评估。这项研究采用了混合方法设计,包括在线调查和李克特量表以及开放式问题,以及与员工和医生的焦点小组和访谈,以及与 MAiD 相关的家庭成员的访谈。共有 356 份在线调查,以及 39 名 HCP 参加的六个焦点小组,以及 14 名与 MAiD 相关的家庭成员的访谈。参与者表示,只有通过提供使能资源,如政策和指南,以确保安全、基于证据、标准化的护理,以及专门的、经过培训的 MAiD 团队,才能提供高质量的 MAiD 护理。来自 HCP 的焦点小组和调查数据均表明,医院开发的基础设施在提供支持各种利益相关者多样化需求的高质量 MAiD 护理方面是有效的。当向医疗保健组织引入新颖且道德上有争议的临床实践时,本研究可以作为评估服务效果和质量的模型。