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探索在加拿大支持亲人接受医疗辅助死亡的体验。

Exploring the experience of supporting a loved one through a medically assisted death in Canada.

机构信息

Internal medicine resident at the University of British Columbia in Vancouver.

Clinical Professor in the Department of Family Practice at the University of British Columbia and a family physician who practises in women's health and assisted death.

出版信息

Can Fam Physician. 2018 Sep;64(9):e387-e393.

Abstract

OBJECTIVE

To explore the experience of family and close friends of patients seeking medical assistance in dying (MAID) in Canada.

DESIGN

Qualitative study using semistructured interviews.

SETTING

A clinic in Vancouver, BC, that provides MAID services.

PARTICIPANTS

Eighteen support people for patients seeking MAID.

METHODS

Clinic patients seeking MAID identified their primary support people during consultations for an assisted death evaluation. Identified support people were invited to participate in the study, and those who were interested were asked to contact the interviewers. Semistructured interviews were conducted, transcribed, coded, and subjected to content analysis to elucidate common themes.

MAIN FINDINGS

All participants were supportive of their loved one's wish for assisted death and they provided emotional and practical support in preparation for MAID. Support persons talked about the journey they went through from their loved one's diagnosis to the MAID request to the actual death. Some were initially opposed but changed their minds after seeing the suffering their loved ones endured. The time before the assisted death involved saying goodbye and, for some, ceremonial rituals (celebration of life, poems, singing, etc). Those interviewed after their loved one's assisted death found the death peaceful and reported that it offered advantages compared with natural death in their loved one's individual circumstances.

CONCLUSION

This study provides insight into experiences of support people coping with a loved one who is seeking or has sought MAID in the context of a country unfamiliar with the legal process of a planned and hastened death. Participants were supportive of their loved one's wishes for assistance in death to end suffering and found the process to be peaceful overall.

摘要

目的

探索在加拿大寻求医疗协助死亡(MAID)的患者的家属和亲密朋友的体验。

设计

使用半结构式访谈的定性研究。

地点

不列颠哥伦比亚省温哥华的一家提供 MAID 服务的诊所。

参与者

18 名寻求 MAID 的患者的支持人员。

方法

寻求 MAID 的诊所患者在协助死亡评估咨询期间确定了他们的主要支持人员。确定的支持人员被邀请参加研究,有兴趣的人员被要求联系访谈者。进行了半结构式访谈,转录,编码,并进行内容分析以阐明共同主题。

主要发现

所有参与者都支持他们所爱的人对协助死亡的愿望,并且在准备 MAID 时提供了情感和实际支持。支持人员谈论了他们从亲人的诊断到 MAID 请求再到实际死亡的旅程。有些人最初反对,但看到他们所爱的人所忍受的痛苦后改变了主意。在协助死亡之前,涉及到道别,并且对某些人来说,还涉及仪式(生命庆典,诗歌,唱歌等)。在亲人协助死亡后接受采访的人发现死亡是平静的,并报告说,与亲人在个人情况下的自然死亡相比,它具有优势。

结论

这项研究深入了解了在一个不熟悉有计划和加速死亡的法律程序的国家中,应对寻求或已经寻求 MAID 的亲人的支持人员的体验。参与者支持他们所爱的人结束痛苦的协助死亡愿望,并发现整个过程总体上是平静的。

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