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网络体验、互联网促进的联系、青少年癌症患儿同胞的韧性和适应

Online Experiences, Internet-Fostered Connection, Resilience, and Adjustment Among Adolescent Siblings of Children With Cancer.

机构信息

Author Affiliations: Center for Healthcare Delivery Science, Nemours Children's Hospital, Wilmington, Delaware (DrsWawrzynski, Alderfer and Arasteh); Department of Pediatrics, Sidney Kimmel Medical College at Thomas Jefferson University, Philadelphia, Pennsylvania (Dr Alderfer); College of Nursing, University of Utah (Drs Guo and Linder); and Primary Children's Hospital, Intermountain Health (Dr Linder); and Cancer Control and Population Sciences Research Program, Huntsman Cancer Institute, University of Utah (Dr Linder), Salt Lake City; College of Medicine, University of Vermont, Burlington (Dr Reblin); and School of Nursing, Oregon Health and Sciences University, Portland (Dr Cloyes).

出版信息

Cancer Nurs. 2025;48(1):E1-E8. doi: 10.1097/NCC.0000000000001284. Epub 2023 Oct 20.

Abstract

BACKGROUND

Pediatric cancer disrupts the lives of siblings in many ways, including physical separations from family and friends that increase risk for distress. Research suggests that siblings use technology and social media to connect with friends and family and seek social support and interaction. However, this may expose siblings to negative online experiences that can erode self-esteem, reducing resilience.

OBJECTIVE

This study explored the relationship between online experiences, internet-fostered connection, resilience, and psychosocial health among siblings of children with cancer.

METHODS

Participants included adolescent siblings (N = 81; aged 12-17 years) of children with cancer. Most were female (56.8%), and 50.6% represented racially or ethnically minoritized groups. Online experiences, social media use, resilience, and psychosocial health were self-reported and analyzed using structural equation modeling.

RESULTS

A majority of siblings reported moderate to severe posttraumatic stress symptoms (PTSSs) (59%) and elevated emotional and behavioral difficulties (EBDs) (53%). Experiencing more positive online experiences was associated with greater perceived connection to family and friends online, but not resilience, PTSSs, or EBDs. In contrast, higher negative online experience scores were significantly associated with more PTSSs and EBDs. In addition, the association between negative online experiences and EBDs was significantly mediated by a negative association between negative online experiences and resilience.

CONCLUSIONS

Although social media may be a valuable tool for helping siblings of children with cancer garner social support, negative online experiences may be detrimental to their adjustment.

IMPLICATIONS FOR PRACTICE

Efforts should be made to preserve and foster resilience among siblings who use social media for support.

摘要

背景

儿科癌症以多种方式扰乱了兄弟姐妹的生活,包括与家人和朋友的身体分离,从而增加了痛苦的风险。研究表明,兄弟姐妹会使用技术和社交媒体与朋友和家人保持联系,并寻求社会支持和互动。然而,这可能会使兄弟姐妹接触到负面的在线体验,从而侵蚀自尊心,降低适应力。

目的

本研究探讨了癌症患儿兄弟姐妹的在线体验、互联网促进的联系、适应力和心理社会健康之间的关系。

方法

参与者包括儿童癌症患儿的青少年兄弟姐妹(N=81;年龄 12-17 岁)。大多数是女性(56.8%),50.6%代表少数族裔群体。在线体验、社交媒体使用、适应力和心理社会健康都是自我报告的,并使用结构方程模型进行分析。

结果

大多数兄弟姐妹报告有中度至重度创伤后应激症状(PTSSs)(59%)和情绪和行为障碍(EBDs)升高(53%)。经历更多积极的在线体验与在网上与家人和朋友的感知联系更紧密相关,但与适应力、PTSSs 或 EBDs无关。相比之下,更高的负面在线体验分数与更高的 PTSSs 和 EBDs显著相关。此外,负面在线体验与 EBDs 之间的关联通过负面在线体验与适应力之间的负相关显著中介。

结论

尽管社交媒体可能是帮助癌症患儿兄弟姐妹获得社会支持的有价值工具,但负面在线体验可能对他们的适应不利。

意义

应努力保护和培养使用社交媒体寻求支持的兄弟姐妹的适应力。

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本文引用的文献

1
Technology-Mediated Support Among Siblings of Children with Cancer.癌症患儿的兄弟姐妹的技术介导支持。
J Adolesc Young Adult Oncol. 2023 Oct;12(5):685-691. doi: 10.1089/jayao.2022.0151. Epub 2023 Feb 10.

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