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Individual approach to long-term therapy in patients with hereditary angioedema (HAE-C1-INH): A case series.

作者信息

Andarawewa S, Aygören-Pürsün E

机构信息

Hereditary Angioedema Center, Department for Children and Adolescents, University Hospital, Goethe University, Frankfurt, Germany.

出版信息

Front Allergy. 2022 Aug 12;3:949387. doi: 10.3389/falgy.2022.949387. eCollection 2022.

DOI:10.3389/falgy.2022.949387
PMID:36032509
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9411966/
Abstract
摘要

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Individual approach to long-term therapy in patients with hereditary angioedema (HAE-C1-INH): A case series.遗传性血管性水肿（HAE-C1-INH）患者长期治疗的个体化方法：病例系列
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Orphanet J Rare Dis. 2024 Jul 9;19(1):257. doi: 10.1186/s13023-024-03251-5.
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Sensitivity to change and minimal clinically important difference of the angioedema control test.血管性水肿控制试验对变化的敏感性及最小临床重要差异
Clin Transl Allergy. 2023 Sep;13(9):e12295. doi: 10.1002/clt2.12295.

本文引用的文献

1
The international WAO/EAACI guideline for the management of hereditary angioedema-The 2021 revision and update.《遗传性血管性水肿管理的国际 WAO/EAACI 指南-2021 年修订版》。
Allergy. 2022 Jul;77(7):1961-1990. doi: 10.1111/all.15214. Epub 2022 Feb 3.
2
What's New in the Treatment of Urticaria and Angioedema.荨麻疹和血管性水肿治疗的新进展。
J Allergy Clin Immunol Pract. 2021 Jun;9(6):2170-2184. doi: 10.1016/j.jaip.2021.03.012.
3
Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey.遗传性血管性水肿患者的临床特征和疾病负担：一项多国患者调查的结果。
Orphanet J Rare Dis. 2021 Feb 18;16(1):94. doi: 10.1186/s13023-021-01717-4.
4
Current and Prospective Targets of Pharmacologic Treatment of Hereditary Angioedema Types 1 and 2.遗传性血管性水肿 1 型和 2 型的药物治疗的当前和潜在靶点。
Clin Rev Allergy Immunol. 2021 Aug;61(1):66-76. doi: 10.1007/s12016-021-08832-x. Epub 2021 Jan 9.
5
Hereditary angioedema: On-demand treatment of angioedema attacks.遗传性血管性水肿：按需治疗血管性水肿发作。
Allergy Asthma Proc. 2020 Nov 1;41(Suppl 1):S26-S29. doi: 10.2500/aap.2020.41.200066.
6
Validation of the Angioedema Control Test (AECT)-A Patient-Reported Outcome Instrument for Assessing Angioedema Control.血管性水肿控制测试（AECT）的验证——一种用于评估血管性水肿控制情况的患者报告结局工具。
J Allergy Clin Immunol Pract. 2020 Jun;8(6):2050-2057.e4. doi: 10.1016/j.jaip.2020.02.038. Epub 2020 Mar 12.
7
Socioeconomic burden of hereditary angioedema: results from the hereditary angioedema burden of illness study in Europe.遗传性血管性水肿的社会经济负担：欧洲遗传性血管性水肿疾病负担研究结果
Orphanet J Rare Dis. 2014 Jul 4;9:99. doi: 10.1186/1750-1172-9-99.
8
The humanistic burden of hereditary angioedema: results from the Burden of Illness Study in Europe.遗传性血管性水肿的人文负担：欧洲疾病负担研究的结果
Allergy Asthma Proc. 2014 Jan-Feb;35(1):47-53. doi: 10.2500/aap.2013.34.3685. Epub 2013 Nov 22.
9
Hereditary and acquired C1-inhibitor deficiency: biological and clinical characteristics in 235 patients.遗传性和获得性C1抑制剂缺乏症：235例患者的生物学和临床特征
Medicine (Baltimore). 1992 Jul;71(4):206-15. doi: 10.1097/00005792-199207000-00003.