Thiessen Maclean, Harris Daranne, Tang Patricia, Raffin Bouchal Shelley, Sinclair Shane
Department of Internal Medicine, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB, Canada.
Faculty of Nursing, University of Calgary, Calgary, AB, Canada.
JMIR Res Protoc. 2022 Sep 1;11(9):e35639. doi: 10.2196/35639.
Information needs are one of the most prevalent unmet supportive care needs of those living with cancer, including patients and their informal caregivers. Understanding how existing questionnaires for evaluating information needs have been developed is important for guiding appropriate use and informing future research. A literature review examining how information needs assessment questionnaires for use in the cancer context have been developed, with a specific focus on how questionnaire items have been identified, does not exist.
This scoping review will examine how questionnaires for assessing the information needs of those living with cancer have been developed with special focus on how patients, informal caregivers, and health care professionals have been involved in the selection and identification of questionnaire items.
This review will include published studies describing the development and validation of information needs assessment questionnaires for use in the oncology context. MEDLINE (Ovid), Embase (Ovid), CINAHL, Scopus, Web of Science, the Cochrane Database of Systematic Reviews, and PsycInfo will be searched. Articles published at any point up to the date of the search will be eligible for inclusion. One person will screen titles and abstracts, and 2 people will screen and extract data from full-text articles.
Results are expected to be available in early 2023. Summary tables and a narrative summary will be used to describe results.
This scoping review will assist in identifying appropriate information needs assessment tools to incorporate into clinical and research contexts in oncology. It will also identify if additional information needs assessment tools are needed.
INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/35639.
信息需求是癌症患者（包括患者及其非正式照护者）最普遍未得到满足的支持性护理需求之一。了解现有用于评估信息需求的问卷是如何制定的，对于指导合理使用和为未来研究提供信息非常重要。目前尚无文献综述探讨用于癌症背景下的信息需求评估问卷是如何制定的，尤其未关注问卷条目是如何确定的。
本范围综述将探讨用于评估癌症患者信息需求的问卷是如何制定的，特别关注患者、非正式照护者和医疗保健专业人员如何参与问卷条目的选择和确定。
本综述将纳入已发表的描述用于肿瘤学背景下的信息需求评估问卷的开发和验证的研究。将检索MEDLINE（Ovid）、Embase（Ovid）、CINAHL、Scopus、Web of Science、Cochrane系统评价数据库和PsycInfo。截至检索日期之前任何时间发表的文章均符合纳入条件。一人将筛选标题和摘要，两人将从全文文章中筛选并提取数据。
预计结果将于2023年初公布。将使用汇总表和叙述性总结来描述结果。
本范围综述将有助于确定适合纳入肿瘤学临床和研究背景的信息需求评估工具。它还将确定是否需要额外的信息需求评估工具。
国际注册报告识别号（IRRID）：PRR1-10.2196/35639。
