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数字健康术语在结局研究中有多大用处?ISPOR 特别兴趣小组报告。

How Useful Are Digital Health Terms for Outcomes Research? An ISPOR Special Interest Group Report.

机构信息

Anita Burrell Consulting, Flemington, NJ, USA.

Health Economics Research Center, University Research and Innovation Center, Óbuda University, Budapest, Hungary; Corvinus Institute for Advanced Studies, Corvinus University of Budapest, Budapest, Hungary.

出版信息

Value Health. 2022 Sep;25(9):1469-1479. doi: 10.1016/j.jval.2022.04.1730.

Abstract

OBJECTIVES

This study aimed to review definitions of digital health and understand their relevance for health outcomes research. Four umbrella terms (digital health, electronic health, mobile health, and telehealth/telemedicine) were summarized in this article.

METHODS

PubMed/MEDLINE, Embase, Cochrane Library, and EconLit were searched from January 2015 to May 2020 for systematic reviews containing key Medical Subject Headings terms for digital health (n = 38) and synonyms of "definition." Independent pairs of reviewers performed each stage of the review, with reconciliation by a third reviewer if required. A single reviewer consolidated each definition for consistency. We performed text analysis via word clouds and computed document frequency-and inverse corpus frequency scores.

RESULTS

The search retrieved 2610 records with 545 articles (20.9%) taken forward for full-text review. Of these, 39.3% (214 of 545) were eligible for data extraction, of which 134 full-text articles were retained for this analysis containing 142 unique definitions of umbrella terms (digital health [n = 4], electronic health [n = 36], mobile health [n = 50], and telehealth/telemedicine [n = 52]). Seminal definitions exist but have increasingly been adapted over time and new definitions were created. Nevertheless, the most characteristic words extracted from the definitions via the text analyses still showed considerable overlap between the 4 umbrella terms.

CONCLUSIONS

To focus evidence summaries for outcomes research purposes, umbrella terms should be accompanied by Medical Subject Headings terms reflecting population, intervention, comparator, outcome, timing, and setting. Ultimately a functional classification system is needed to create standardized terminology for digital health interventions denoting the domains of patient-level effects and outcomes.

摘要

目的

本研究旨在回顾数字健康的定义,并了解其对健康结果研究的相关性。本文总结了四个伞状术语(数字健康、电子健康、移动健康和远程医疗/远程医学)。

方法

从 2015 年 1 月至 2020 年 5 月,我们在 PubMed/MEDLINE、Embase、Cochrane Library 和 EconLit 上搜索了包含数字健康关键医学主题词(n=38)和“定义”同义词的系统评价,以进行检索。独立的两人小组进行了审查的每个阶段,如果需要,由第三名审查员进行调解。一名审查员统一了每个定义的一致性。我们通过词云进行文本分析,并计算了文档频率和反语料频率得分。

结果

搜索共检索到 2610 条记录,其中 545 篇文章(20.9%)进行了全文审查。其中,39.3%(545 篇中的 214 篇)符合数据提取标准,其中 134 篇全文文章被纳入本分析,包含 142 个伞状术语的独特定义(数字健康[n=4]、电子健康[n=36]、移动健康[n=50]和远程医疗/远程医学[n=52])。存在开创性的定义,但随着时间的推移,这些定义逐渐被修改,并且不断有新的定义被创造出来。然而,通过文本分析从定义中提取的最具特征的词语,这四个伞状术语之间仍有相当大的重叠。

结论

为了聚焦结局研究的证据综述,伞状术语应该辅以反映人群、干预、对照、结局、时间和设置的医学主题词。最终,需要一个功能分类系统来为数字健康干预措施创建标准化术语,这些术语表示患者层面效果和结局的领域。

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